We work with
stakeholders to improve care for persons suffering from chronic serious mental
illness through cost-effective network enhancements:
(a) a person-centered culture (instead of program-centered),
(b) financial & other incentives, based on performance & outcomes, for providers to better serve this population;
(c) more Lighthouse- like homes, i.e. community living properties with 24-hours per day and 7-days per week supportive staff inside these properties,
(d) humane, well-regulated facilities for secure residential treatment, involuntary as medically appropriate, for those who need more intensive care for a longer period of time to gain insight and continue their recovery in a less restrictive setting; and,
(e) other possible solutions.
encouraged to see a focus back on research and understanding individuals that
lack insight into their illness.
HIGHLIGHTS ANOSOGNOSIA, CRIMINALIZATION OF SEVERE MENTAL ILLNESS IN CALL TO ACTION
ARLINGTON, VIRGINIA – On Thursday, Dr. E.
Fuller Torrey gave the
keynote speech at the American Psychiatric Association’s IPS Mental Health
Services Conference in New York.
Widely considered a celebration of Dr. Torrey’s monumental
career, the speech focused on one of the most important questions facing modern
mental health care: what did American psychiatry get so wrong that caused our
system to fall apart?
Dr. Torrey’s answer identified five key causes:
A misunderstanding of the causes of psychosis;
Ignorance regarding the role lack of insight (anosognosia) plays in providing effective care;
A failure to prioritize care for the tens of thousands of individuals being discharged from state hospitals;
An overreliance on a top-down federal approach versus directly coordinating care with state and local communities;
A failure by NIMH to effectively oversee the system or to prioritize serious mental illness care.
Dr. Torrey, speaking to hundreds of community psychiatrists,
detailed how emptying state psychiatric hospitals without a plan for how people
would be treated in the community led to a series of tragic outcomes, including
homelessness, criminalization and a system collapsing under the weight of
ineffective, unresponsive programs.
He concluded the speech with two calls to action.
First, he asked the IPS to prioritize the problems he listed,
noting that “America needs IPS to solve these matters.”
The Treatment Advocacy Center is a national nonprofit organization dedicated to eliminating barriers to the timely and effective treatment of severe mental illness. The organization promotes laws, policies and practices for the delivery of psychiatric care and supports the development of innovative treatments for, and research into the causes of severe and persistent psychiatric illnesses, such as schizophrenia and bipolar disorder.
are tent cities under freeway structures and along various streets. People that
self-organized in the popup tent compounds are most likely not individuals
suffering from untreated serious mental illness. I believe that persons in the
tent communities are far more likely to be homeless due to affordability,
addiction, or past felony convictions (which make it more difficult to find
I am in
the downtown area of San Francisco this week, and one cannot ignore the
devastating effect of not treating persons with serious mental illness. The
lack of dignity is palpable. The stench of urine is overpowering even despite
the businesses paying cleaners every morning to wash down their storefronts.
People should not live in cardboard boxes and relieve themselves on the
sidewalk. Some of the folks I observe are too ill to even beg for food. They
are fighting demons I cannot see, arguing with invisible enemies within. As
Chick Arnold once said, “They are dying with their rights on.” Meaning that in the interests of protecting
certain civil rights (ability to choose one’s lifestyle i.e.: ‘he’s his own
Guardian.’)” But at what cost?
I was on a docent tour at the Legion of Honors yesterday, and a gentleman from Germany was discussing the weak social system he observed in the Bay area. He said not helping vulnerable people is intolerable to Europeans, but that they pay a high cost to achieve that; about 60% of their salaries. We don’t want to become a socialist state, we need to support cost effective solutions that are working:
Lighthouse like supervised community living homes and
Yet that often seems what we continue to do when dealing with
the chronically homeless and mentally ill.
Which is why I’m always on the lookout for out-of-box ideas. I’d
like to cite two examples of such thinking in helping individuals step away
from the streets-jail-emergency room treadmill.
The staff at St. Joseph Healthbecame concerned when it kept seeing the same
patients cycle through its two hospitals in northern California. It was obvious
why. There was no safe place for these chronically homeless and often
seriously mentally ill patients to go after they were discharged.
St. Joseph’s Hospital began paying for five beds at a local
clean and sober house. That soon grew to fifteen beds. The hospital pays a
yearly amount for the building and insurance, screens potential candidates and
provides clinical case management for residents during their stay. A community
homeless advocate provides 24-hour non clinical staff. Funding for two nurses,
a social worker and a health coach — comes out of the hospital’s operations
The goal is to stabilize patients enough to move them out of the
program in 21 days, but longer stays occur if needed. St. Joseph’s
estimates it saves as much as $1,500 per patient per day by keeping them out of
the hospital. And its success rate with patients is good. About half of the
homeless who go into respite move into transitional housing with assistance
from the team.
According to Healthcare Dive, more and more hospitals are
stepping up to deal with homelessness and whittle down accompanying high
medical utilization costs. Their efforts range from providing post-discharge
respite care to residential case management to
donating money to build new housing units for
homeless and low-income individuals.
Most successful programs
rely on strong community partnerships.
I serve on the board of the Corporation for Supportive Housing, a
national organization focused on the homeless, and it estimates that healthcare
systems have invested between $75 million and $100 million in housing projects
that CSH supports, according to my friend and CSH spokesman Robert Friant, who
was quoted in the Healthcare Dive article.
Twenty-five cells were converted to rooms. Instead of
bars, each has a door and its own bed, sink, toilet and television. Clients eat
in a communal dining area. Staff from nonprofit organizations and civilians
employed by the sheriff’s department provide warm handoff services — outside of
the criminal justice system. The cost to reconstruct the cells was $10,000.
Items such as televisions and kitchen appliances were donated. The goal is to
keep individuals from cycling back into the criminal justice system.
“Chances are Apple’s plan will save Albany County taxpayers
hundreds of thousands of dollars a year, make the city safer and save lives,”
Of course, housing the homeless in jails is unorthodox and makes
some advocates uneasy because it can cause further stigmatization. But living
on the streets is dangerous and deadly. Studies show the average life
expectancy for chronically homeless individuals is in their early 50s.
One reason why the St. Joseph Hospital model and Sheriff Apple’s
method appeal to me is they were solutions that originated from the local
community up, rather than the federal government down.
I began this blog with the cliche about insanity. I will end it
with another quote that I repeat over and over and over again on this blog and
in my speeches.
‘Never doubt that a small group of thoughtful, committed
citizens can change the world: it’s the only thing that every has.’ Margaret
As we wrote
about in our August 2019 blog, “What
are the consequences of an inadequate number of long term public psychiatric
inpatient beds?“; we
seem to have no shortage of short term stay private pay psychiatric hospitals,
but we still lack the long-term public beds. Until we repeal the IMD exclusion,
there will be no motivation to ensure that patients that need longer stays in
the hospital will be permitted to remain in the hospital. Utilization managers
apply pressure to discharge patients to outpatient treatment. There is also an
undercurrent of belief that anytime someone needs hospitalization, it is a
failure on the part of the outpatient treatment team. Unfair access to
hospitalization, when in a behavioral health crisis to appropriate admissions,
seems to be a parity issue.
Let’s look at a medical model of a physical lifelong
disease process. A person who is obese and has type two diabetes may require
readmission to a hospital for re-regulation of their treatment for their
Uncontrollable insulin levels may be due to one of the
a) the patient not taking medications as prescribed,
b) eating sugar despite warnings, or c) generalized signs
of changes in their metabolic system.
Upon patient stabilization in the hospital, the
outpatient treating physician is not penalized for the initial admission.
Why is mental health inpatient treatment any different
than medical inpatient treatment for physical diseases?
Isn’t the head part of the body?
This is a parity violation!
Phoenix to get new psychiatric hospital, but some say it won’t fill the need
The Phoenix area is in desperate need of more in-patient
hospital beds for individuals with psychiatric needs, mental health workers
But some fear the new $19.5 million, 96-bed private Phoenix
Medical Behavioral Hospital opening in central Phoenix next spring won’t
be the solution.
Caliber, a development company, bought the building at
14th Street and McDowell Road for $10 million and is putting $9.5
million into renovations. NeuroPsychiatric Hospitals will run the
facility, company spokesman Jim Hummer said.
Hummer said the hospital will only treat adults and expects
a majority of its patients will come from senior living facilities. The company
owns similar facilities in Indiana.
Some in the mental health community question whether the new
hospital will effectively serve the community given the long-term
care patients with chronic mental illnesses require.
beds in the Valley
There are currently 433 licensed, state-run in-patient
psychiatric beds in metro Phoenix, according to the Maricopa
Integrated Health System. An additional 144 beds are slated to be available
by April 2020 at Maryvale Hospital in Glendale.
Even with the additions, Phoenix is still in need of
in-patient psychiatric beds, health care officials said.
“Everything that I’ve read indicates that Phoenix has a
lower than typical number of beds for the population that we
have,” said Dr. Gene Cavallo, vice president of the Maricopa
Integrated Health System. “For a metropolitan area of this size, we still
have a need for more.”
Arizona ranked fourth worst in the nation, with 4.4 beds
available per 100,000 people.
offers private beds
The beds opening up at the Caliber-owned hospital will
be for voluntarily-admitted patients.
These patients may have public or private health insurance.
The difference, however, is there is no court mandate or petition that
forces someone to enter Phoenix Medical Behavioral Hospital like the
patients publicly-operated hospitals must take.
Unlike other private hospitals, Hummer said, Phoenix Medical
Behavioral Hospital will have a two-armed approach in its treatment, part
medical and part therapy. He said patients are usually treated with medication,
but this hospital will also have a team of psychiatrists and therapists
who will be there to help patients.
But even that won’t meet the Valley’s needs, one mental
health advocate said.
Meeting community’s needs
Charles “Chick” Arnold has been a mental
health lawyer working with Valley families of people who are mentally
ill for more than 30 years. Arnold successfully sued Arizona in 1989,
alleging that Maricopa County did not provide a comprehensive community mental
health care system as required by the state.
There are two types of people with mental illnesses who may
need a psychiatric hospital, Arnold said. And their needs are quite
The first type is those who’ve suffered a momentary mental
health crisis, like environmental depression or a psychotic episode, Arnold
said. Such people may need admittance to a hospital for short period of
time, roughly 30 days, because their illness can be addressed relatively
“The time someone needs to spend in the hospital is based on
a number of factors: quick response to meds, social and family support, and a
plan for when they’re ready to leave the hospital.” Dr. Gene Cavallo, vice
president of the Maricopa Integrated Health System
The second type is people with mental illnesses
such as clinical depression, schizophrenia or bipolar disorder. These people
may need to be admitted to a psychiatric facility for a longer period of time
and their illnesses are a lifelong struggle.
“The time someone needs to spend in the hospital is
based on a number of factors: quick response to meds, social and family
support, and a plan for when they’re ready to leave the hospital,” Cavallo
The new hospital will focus on those acute mental illnesses
and patients will typically stay in the facility for less than a month, Hummer
“People that come to us are in a crisis
situation, so they’re either threatening to harm somebody, harm
themselves, they may have hallucinations, they may be psychotic,”
Hummer said. “One we get them back to their baseline of where they have
been before all of these things happened, that’s when they’re discharged from
the hospital. Our average length of stay is anywhere between 15 to 21
Arnold said the real need is with that second group. Without
more long-term beds for them, they will continue to cycle in and out of the
Phoenix area’s jails and emergency rooms, Arnold said.
“Do we need more beds?” Arnold asked, “Well,
we don’t need these kind of beds.”
“What they’re offering is short-term hospital space for
people who have substance abuse or behavioral health issues,” Arnold
said. “There are a lot of private hospital options that, frankly, don’t
generally serve this particular population very well in the absence of any type
of follow up.”
Laurie Goldstein, vice president of the Association for
the Chronically Mentally Ill in Arizona, has a son with schizoaffective
disorder who went through many short-term facilities on his way to a
About 40% of people with psychotic disorders don’t recognize
they’re ill, she said, complicating a physician’s ability to give them a
“Everything nowadays is very short-term,”
Goldstein said. “So I think taking someone, whether it’s public or
private, to a psychiatric hospital where they want to tweak their meds for
three days or five days, and then say that’ll stabilize them outside — that
just doesn’t happen.”
Hummer said NueroPsychiatric Hospitals was contacted by
health care people in metro Phoenix saying there is a need for a hospital like
this one and asking them to help.
Chuck and I had an
opportunity to meet with Cheryl Roberts and Francis J. Greenberger while in New
York City this past fall. We discussed
their pilot program to develop an alternative to incarceration pilot facility
to provide a secure “locked” therapeutic environment for those with
serious and or chronic mental illness or personality disorders.
the New York Daily News printed an Op Ed by Green
burger Center Executive Director
Cheryl Roberts about the need to rethink the jail closure plan. There are better ways to provide treatment
and rehabilitation to people living with serious mental illnesses and substance
use disorders and to end the cycle of homelessness and incarceration.
city of Albany recently changed the name of the county jail from the Albany
County Correctional Facility to the Albany County Corrections and
Rehabilitative Services Center to reflect its broader mission to provide
housing and services to homeless people.
Most importantly, staff from nonprofit organizations and civilians
employed by the Sheriff’s department will provide these services outside of the
criminal justice system.
Florida, over the past two decades, nearly 9,000 people have been referred to a
program created by Miami Dade County Judge Steven Leifman to divert individuals
with serious mental illnesses away from the criminal justice system and into
comprehensive community-based services. Annual recidivism rates among
participants went from 75% to 20% and the jail population dropped by 40%,
allowing the county to close one of its jails and save $12 million a year.
New York City finalizes its plan to close Rikers, more diversion and less jails
space is needed.
long ago, Albany County Sheriff Craig Apple changed the name of the county jail
from the Albany County Correctional Facility to the Albany County Corrections
and Rehabilitative Services Center to reflect its broader mission to provide
housing and services to homeless people. Most importantly, staff from nonprofit
organizations and civilians employed by the sheriff’s department will now
provide these services — outside of the criminal justice system.
cost to reconstruct the cells was $10,000. Things like televisions and kitchen
appliances were donated.
the first clients to be admitted will be people released from jail who find
themselves homeless. The goal is of course to keep them from cycling back into
the criminal justice system.
are Apple’s plan will save Albany County taxpayers hundreds of thousands of
dollars a year, make the city safer and save lives. That’s what happened in
Miami-Dade, Fla., when a judge started providing services and treatment to
people who constantly cycled in and out of jails, hospitals or homelessness.
the past two decades, nearly 9,000 people have been referred to a program
created by Judge Steven Leifman to divert individuals with serious mental
illnesses away from the criminal justice system and into comprehensive
community-based services. Annual recidivism rates among participants went from
75% to 20%. The jail population dropped by 45%, allowing the county to close
one of its jails and save $12 million a year.
to Miami police, officer shootings of people with serious mental illness went
from two a month to six in the last eight years, over a time period during
which the number of arrests in Dade County went from 118,000 to 54,000.
build on this success, Dade County just broke ground on its own “one-stop shop”
facility to allow judges the ability to provide people with serious mental
illnesses accused of misdemeanors or low-level felony level crimes with an
off-ramp from the criminal justice system with the goal of never seeing them
again, at least not behind bars.
facility will offer treatment for mental health, substance abuse, and primary
medical care needs, including eye and dental care; a court room; a crisis
stabilization center where police can bring someone instead of arresting them;
short- and longer-term residential space; a day activity program to teach
self-sufficiency skills; and a supportive culinary employment program.
New York City grapples with how to replace Rikers in the name of progressive
reform, it’s still not too late to consider building “one-stop shops” like
Albany and Dade County.
York City has already demonstrated a remarkable and unprecedented ability to
reduce the jail population. Now, it must address the core populations that will
make further reductions more difficult.
host communities of the proposed borough-based jails and advocates want smaller
facilities. The shortest route to delivering them is to do what Albany and Dade
have done — to make room elsewhere to better serve people with specific chronic
needs such as housing, mental health and substance-abuse treatment — none of
which are or should be the forte of jails or the city’s Correction Department.
it moves jail beds out of Rikers and into the boroughs, the city has a rare
opportunity to build more treatment and rehabilitative beds, and to finally
right the wrong of the decades-long mass incarceration of people with mental
illness. Incarcerating this population has not been fair, effective or fiscally
responsible to them or their families, nor to corrections officers or
is the time to ensure that mental health treatment is provided outside of the
criminal justice system and in the public health system, where it belonged in
the first place.
Roberts is executive
director of the Greenburger Center for Social and Criminal Justice.
attending a global mental health conference last fall, ACMI Vice President and
Founding Director, Laurie Goldstein asked a psychiatrist from Trieste, Italy, “About
how many persons with serious mental illness are in your jails?” The
psychiatrist looked startled and replied, “We do not send our persons with
mental illness to jail.” He went on to explain that if a person is experiencing
a psychotic episode and the police are called, the police call the person’s psychiatrist,
who treats the person until the person is stabilized. The Italian psychiatrist
went on to explain that it is his “responsibility to prevent and also treat
psychotic episodes, even if the person is jailed. Community providers remain engaged and
accountable for their patients’ progress.
Trieste Model, labeled by the World Health Organization (WHO) as one f the most
progressive public psychiatry delivery systems, is now a collaborating center
for mental health research with the WHO. The Trieste model manages to put the
person at the center of the delivery system by 24-7 comprehensive treatment
through a network of mental health centers that are “capable of dealing with
the most severe conditions and of supporting clients in their daily life, with
a view towards recovery and social inclusion.” https://zeroproject.org/practice/mental-health-department-whocc-italytrieste/ These 24-7 clinics not only replaced all
psychiatric hospitals in Trieste, today fewer people go to jail because of the
lack of continuity of care and cooperation between the law enforcement and
mental health systems. The “sequential intercept model” enjoys deserved praise;
Trieste shows that the first key intercept if effective clinical care.
the Trieste Model is transferrable or sustainable elsewhere is debatable. But its existence and success generate food
for thought about the relationship between the mental health and criminal
justice systems in the United States and Arizona, specifically. Our communities experience high profile
incidents in which an individual living with a serious mental illness commits a
horrific crime, often resulting in death or serious injury. Often the individual is receiving services in
the public behavioral health system, but in a psychotic state due to inadequate
treatment either because of non-adherence or inadequate follow-up.
to these events are intense and sometimes polarized. Some believe the behavioral health industry
“gets a pass” for poor management of potentially violent, seriously mentally
ill “patients” who become “criminals.” Some
contend that mental illness should never excuse criminal conduct. In terms of city, county and state fiscal
accountability, there is no question that law enforcement and the corrections
systems shoulder an increasing financial burden of caring for persons who
commit a crime while they are enrolled in treatment in the behavioral health
that the Maricopa County jail, one of the largest in the country, “books”
(admits) approximately 100,000 individuals each year. Of these, approximately
8,200 (8.2%) of the total daily population are identified with SMI; another
16,000 (16%) have a significant mental health issue. Once incarcerated at the jail, the cost of
care for these detainees shifts to Correctional Health Services (CHS) and
Maricopa County https://www.maricopa.gov/5161/About-Correctional-Health-Services-CHS The
Arizona Department of Corrections (ADC) has a similar patient population. In 2015, approximately 26.6% of all ADC inmates receive mental
health services; of these, 4.7% are classified as SMI. Nicole Taylor and Karen
“HEALTH DISORDERS AND THE CRIMINAL JUSTICE SYSTEM,” Arizona Dept. of
defining difference in the “system” in Trieste, Italy, and Arizona (and the
entire United States) is the presence of multiple payors and the involvement of
private insurers in coverage decisions, rate setting, utilization management,
and financing of health care services.
Nonetheless, we can ask how behavioral health providers can be more responsible
and accountable for the ongoing treatment of individuals in their care who
become the justice system-involved and end up in jail or prison? Maybe dollars for care and services could “follow”
the individual from clinic to jail or prison and back again? Maybe the county
and state would bill the providers for treatment of incarcerated members? Maybe community providers would treat the
person post-incarceration on a contract basis?
are no easy answers but many fascinating questions for innovation in the
delivery of services, especially
person-centered services. The
bureaucracies, payor systems, and pages of statutes and regulations are
formidable obstacles. But there is an
opportunity to examine ways to more equitably and effectively deploy resources
of law enforcement, corrections, and the behavioral health system to accomplish
likelihood that individuals living with SMI will become “justice system
involved” ––an obfuscation of saying “committed a crime” or “got arrested”
equitably distribute fiscal and clinical responsibility for treating
individuals in jail or prison.
Laurie Goldstein’s question to the Italian psychiatrist was simple but provocative. “How many people with SMI are in your jail?” Maybe Arizona can find some answers in Trieste, Italy, which reduced these numbers through a truly person-centered community delivery system. Trieste, Italy does have a much smaller population that Maricopa County, so questions of scale and the intimacy of community is called into question. It may not be an fair comparison, but best practices may be applied in smaller clinical settings. In 2018, Trieste had a population of about 205,000 and it is the capital of the autonomous region Friuli-Venezia Giulia. The metropolitan population of Trieste is 410,000, with the city comprising about 240,000 inhabitants. Maricopa County is located in the south-central part of the U.S. state of Arizona. The U.S. Census Bureau estimated its population was 4,410,824 as of 2018, making it the state’s most populous county, and the fourth-most populous in the United States, containing more than half the population of Arizona. Wikipedia
Dr. Michael Franczak, noted psychologist and population health scientist, sagely noted, “The continuum of care is really a series of swinging bridges over a very large canyon.” Dr. Franczak’s language is poignant for families who long assist loved ones to navigate the particularly deep and wide “canyon” of chronic serious mental illness. These families know that “provider culture matters.” But too often, when we decide to redesign or add a bridge to the COC, we overlook these families as a valuable source of information about provider cultures.
Nearly all behavioral health providers claim to be “person-centered”. Most are not. Most are “program-centered” — the patient must “fit” the program or move on. If you can’t make it on a given bridge, you fall off or have to make it on your own – back or ahead. Consequently, individuals living with chronic, serious mental illness often get ejected because the severity of their illness interferes with their ability to participation in “encounters. Or their behaviors — which arise from their mental illness — are deemed “just not a good fit” for the program. The individuals are expected but often unable to find footing (stay stable) and hang on to the swinging bridge. They often end up homeless, re-hospitalized, arrested, or fall off the COC tumbling into the canyon. And this cycle often repeats many times.
Patient-centered care describes an approach to providing health care in a manner that emphasizes and respects the needs, values, and choices of patients (Australian Commission on Safety and Quality in Health Care, 2010). It has been delineated into ﬁve key dimensions: (a) viewing health in a holistic manner, (b) seeing the patient as a person with needs that extend beyond their illness, (c) sharing power and responsibility with patients and helping them collaborate in their own care, (d) building therapeutic alliance with patients and maximizing the therapeutic value of the patient-provider relationship, and (e) understanding how the personal qualities of the provider inﬂuences quality of care (Mead & Bower, 2000). Recovery-oriented care shares many of these same features (U.S. Department of Health and Human Services, 2009). Published research on patient-centered care and the related topics of patient engagement and recovery-oriented care have begun to demonstrate that involving patients in care processes, including the planning and the delivery of health services, will improve outcomes (Resnick & Rosenheck, 2008; Sidani, 2008; Warner, 2010). James D. Livingston, Alicia Nijdam-Jones & Johann Brink (2012) A tale of two cultures: examining patient-centered care in a forensic mental health hospital, Journal of Forensic Psychiatry & Psychology, 23:3, 345-360, DOI: 10.1080/14789949.2012.668214
The behavioral health industry incentivizes “program-centered” delivery by financially rewarding organizations that serve a large number of members with services appropriate for most members and for which the program is guaranteed reimbursement. Providers sometimes achieve good performance metrics by rejecting or ejecting “high-utilizers” who need more services than existing performance measures identify and incorporate, and which are expensive and difficult to provide in “standard” programs. Whether a given program “cherry-picks” members for financial gain or ease of practice or lacks adequately trained and experienced staff, the result is the same: individuals living with chronic SMI often get excluded and tumble into the canyon below. Their recovery journey is interrupted, sometimes perilously ended.
Some providers are truly “person-centered”. These providers develop ways to use program protocols as guidelines, but they develop meaningful Individual Service Plans (ISPs) to support each patient’s progress in a strength-based, person-centered recovery journey. The program adjusts to fit the person, not vice versa. These providers create ways to steady the swinging bridges. The individual is able to remain on the recovery journey, perhaps pausing longer on one bridge than other individuals in order to stabilize. Truly person-centered culture thus permits individuals to remain on the COC, move from bridge to bridge, avoid the perils in the canyon below, and gain strength to meet the challenges ahead.
When even a few families gather, we often hear and see remarkable information and wisdom gleaned through decades of lived-experience helping loved ones navigate the COC — swinging bridges and all. Family members “know” the frustrating (and dangerous) reality of an individual with chronic serious mental illness being ejected from programs due to the chronicity and severity of the very illness that brought the individual to the program. Family members keep journals, photos, arrest records, bills from hospitals emergency rooms, and more. When we stitch together family stories about different providers’ culture of care over time in a given locale, we gain deeper understanding of how specific provider’s culture facilitates or impedes a recovery journey, especially for those living with chronic SMI. The voice of persons with serious mental illness also have a very significant perspective that needs to be heard. Without shared responsibility for the treatment plan, most people struggle to achieve recovery.
Unfortunately, families often are excluded
from meaningful interaction in many facets of the recovery model as often
implemented by some providers. But families
are least utilized in what may be the most important aspect of developing
successful new programs to fil the gaps on the COC: evaluation of providers who
run truly person-centered care. This is
unfortunate and undermines fully informed public policy.
Family members often know which specific providers, despite being rewarded for “good numbers” under traditional performance metrics, may have done so at the expense of good care for hose living with chronic SMI. Family members can identify providers who are skilled enough and oriented to implement truly person-centered services in a strength-based recovery program. Family members know which providers manage to connect the swinging bridges on the COC, even for individuals who are non-adherent to treatment or have Anosognosia or must manage co-occurring disorders … or all of these.
As we try to find new, clinically appropriate options to fill gaps between the swinging bridges on the COC for those living with chronic SMI, qualitative factors should be more prominent in the selection of providers for programs and evaluation of providers across all programs. Qualitative factors may appear to be more difficult to evaluate, may appear somewhat subjective, and may be harder to “defend” than purely quantitative factors. The number of crisis interventions or hospitalizations is easy to count. Evaluating patient-centered culture is not so simple. But information from families is rich, powerful, and provides human insight not available from quantitative performance metrics. Contemporary mixed methods provider evaluation is possible and beneficial. And qualitative data gleaned from interviews with families about their experiences with specific providers will add “depth of understanding to complement breadth of understanding afforded by quantitative methods.” Palinkas LA. Qualitative and mixed methods in mental health services and implementation research. J Clin Child Adolesc Psychol. 2014;43(6):851–861.doi:10.1080/15374416.2014.910791. PMID: 25350675.
Family members of those on a recovery journey with chronic serious mental illness are an important source of information to identify providers who offer truly patient-centered care for those living with chronic serious mental illness. Providers with demonstrated person-centered culture should be embraced as essential to steadying those swinging bridges in the COC for those living with chronic SMI and trying to traverse the very large canyon below.
is often debate about whether involuntary treatment works if the individual is
not ready to engage in their own recovery.Individual choice of treatment is always
preferable, but not always safe for the patient or others.”
Patients with psychiatric disorders refuse medications for a variety of
reasons, including experience with, or fear of, side effects. In other cases,
the refusal is based on lack of awareness of illness (anosognosia) or on
delusional beliefs. Many such patients must ultimately be medicated
involuntarily. Studies suggest that the long-term effects of involuntary
medication on individuals with schizophrenia and manic-depressive illness
(bipolar disorder) are more beneficial than is commonly thought. In most
studies, the majority of patients retrospectively agreed that the use of
involuntary medication (i.e. involuntary (forced) treatment) had been in their
best interest. Anecdotal claims by opponents of forced treatment that
involuntary treatment has widespread, devastating, and lasting effects are not
supported by these studies.
“We already knew AOT an effective
treatment option that saves lives. The report shows it saves money, too, even
in geographically different settings where it is being put to work in
dramatically different ways.”Doris A. Fuller, executive director of the
Treatment Advocacy Center.
year in Maricopa County, Arizona, there were 3,600 Court Ordered Evaluations
(COE) requested. Of those evaluations, 2,600 Mercy Care adult members were
assigned Assisted Outpatient Treatment (AOT).
In order for a person to meet criteria for court ordered psychiatric
treatment under Title 36, they must be either unwilling or unable to accept
treatment voluntarily. “Unable” would apply to those who lack sufficient
understanding of their psychiatric condition, or of the advantages vs.
disadvantages of various treatment options, to make an informed decision,
even after efforts were made to inform them fully. Involuntary treatment does
not equate with “medication only”, as medication is not the sum total of
psychiatric treatment; while it has a major role for treatment of some major
mental illnesses, for other conditions it is less central to the treatment
plan. For example, a person who is acutely distraught due to a life event
(e.g. death of a spouse) might, in rare cases, need involuntary hospitalization
if he/she became suicidal and was unwilling to seek help, but medication might
not be required in that situation. Psychotherapy and counseling may be a more
Arizona, AOT is the Title 36 Court Ordered Treatment (COT) which allows a
certain number of involuntary inpatient days each year and appoints an
outpatient provider responsible for supervising and administering the
outpatient treatment with the option of forced administration of medication on
an outpatient basis. The mental health
court has the authority to bring the person back into an inpatient setting at
any time (the outpatient team can request that the judge order the person back
to the hospital) as long as there are inpatient days remaining on the
order. These 2,600 Mercy Care members
are in our SMI, ACC, and ALTCS plans. In
addition to Mercy Care, there are another 6 ACC plans and 1 other ALTCS plan in
Maricopa County which also have members on COT. AHCCCS recently implemented
identification of COT members statewide so AHCCCS would be able report how many
adults statewide are on COT.
Community Treatment (ACT) team providers, findings include:
hospitalizations per 1000 members have decreased 21% (compared to an 8%
reduction of psychiatric hospitalization in prior year)
hospitalizations per 1000 members have decreased 12%;
department visits per 1000 members have decreased by 11% (compared to a 6%
reduction in prior year);
per 1000 members has decreased by 19%
Forensic ACT team providers, findings include:
forensic ACT team achieved a 57% reduction in the number of jail bookings;
54% reduction in psychiatric hospital admission (compared to a 31% reduction in
27% reduction in Emergency department visits (compared to an 18% reduction in
prior year); and
treatment (COT -a type of involuntary treatment-) in the community reduces
taxpayer costs associated with untreated serious mental illness for individuals
stuck in the “revolving door” of repeated hospitalization, incarceration and
other consequences of non-treatment, according to a report issued Wednesday.
study, conducted by Health Management Associates, found that the costs of
serving clients in assisted outpatient treatment (“AOT”) were more than offset
by the reduced need for inpatient hospitalization and other high-cost services.
A net public savings resulted.
Insel, director of the National Institute of Mental Health, has estimated that
the total cost of non-treatment to the government—including things like
Medicare, Medicaid, disability support and lost productivity—is as much as $317
billion per year. Other studies have suggested that it costs federal, state and
local governments $40,000 to $60,000/year to care for a single homeless person
with a serious mental illness. There are roughly 250,000 mentally ill homeless
people in the U.S. today. New Study: “Assisted Outpatient Treatment Saves More
Taxpayer Money Than It Costs” Arlington, VA (PRWEB)February 18, 2015
patients, seven with schizophrenia and two with bipolar disorder, refused
medication when admitted to a psychiatric unit. All nine were given a single
injection of long-acting fluphenazine decanoate. At the end of two weeks, their
symptoms were markedly improved (BPRS improved from 10.4 to 4.1), and all were
accepting medication voluntarily. Keisling R. “Characteristics and outcome of
patients who refuse medication.” Hospital and Community Psychiatry 34:847–848,
patients refused medication when admitted to a psychiatric unit. Three-quarters
of them were diagnosed with schizophrenia or bipolar disorder. Compared to a
control group that accepted medication, the refusers had less insight into
their illness, were more psychotic, had higher mood elevation, and were more
grandiose. After two weeks of medication, six of the patients (50 percent) no
longer wished to refuse medication. “They were more likely to view medications
as important for their illness and were less likely to believe in alternative
treatments.” The other six patients “still preferred to refuse treatment
despite considerable improvement in their clinical condition.” Marder SR et al.
“A study of medication refusal by involuntary psychiatric patients.” Hospital
and Community Psychiatry 35:724–726, 1984.
Twenty-four patients who had been involuntarily medicated with antipsychotic medication were interviewed at the time of discharge from the hospital. Sixteen (67 percent) were diagnosed with schizophrenia or bipolar disorder, and 5 more (21 percent) with atypical psychosis. Thirty-three percent of the patients said they had refused medication because they believed they had no need for it, 29 percent said they had refused medication because of “severe confusion or psychotic ideation,” and 17 percent “stated that they did not know why they [had] refused medication.” At discharge, 17 patients (71 percent) agreed that the decision to involuntarily medicate them had been correct and agreed with the statement: “If I become ill again and require medication, I believe it should be given to me even if I don’t want it at the time.” The 7 patients (29 percent) who disagreed scored high on measures of grandiosity, hostility, and suspiciousness; 6 of them had a diagnosis of bipolar disorder. The authors concluded that “it is impossible to avoid the conclusion that the treatment refusal of every patient in our sample was influenced by psychosis.” Schwartz HI et al. “Autonomy and the right to refuse treatment: patients’ attitudes after involuntary medication.” Hospital and Community Psychiatry 39:1049–1054, 1988.”
patients who had been forcibly medicated during their psychiatric
hospitalization were retrospectively interviewed. Seven strongly agreed and two
somewhat agreed (thus 82 percent total) that their involuntary treatment had
been useful. Seide M et al. “The reluctant psychiatric patient: ethics and
efficacy around the issue of forced medication” (Session 2219). American Public
Health Association 117th Annual Meeting, Chicago, October 24, 1989.
patients who had been placed under guardianship, 75 (95 percent) of whom had
been involuntarily medicated, were asked to retrospectively fill out a
questionnaire. Eighty-seven percent of the patients had been diagnosed with
schizophrenia or bipolar disorder. The results were as follows:
you have a mental illness?
not – 47%
know – 9%
do – 44%
helpful was your guardianship?
helpful – 45%
unhelpful – 34%
was a high correlation between patients who believed they had a mental illness
and those who found the guardianship helpful (p < .01). The authors
concluded that “although a majority of
the patients were against enforced treatment in principle, often because they
thought it conflicted with their civil rights, most found the actual
experience, including medication, to be helpful.”
NHS and Hafner RJ. “Attitudes of psychiatric patients and their relatives to
involuntary treatment.” Australian and New Zealand Journal of Psychiatry
18 patients (60 percent) said that having forced medication was a good idea, 9
(30 percent) disagreed, and 3 (10 percent) were unsure. Most of those who
disagreed had either paranoid schizophrenia or bipolar disorder with
grandiosity. The authors concluded that “forced medication frequently
restores the capacity to make competent decisions and often results in a more
rapid return of freedom to be discharged from involuntary hospitalization.”
Greenberg WM et al. “Patients’ attitudes toward having been forcibly medicated.”
Bulletin of the American Academy of Psychiatry and the Law 24:513–524, 1996.
Szasz was the probably the greatest defender of patient rights since Pinel (the
father of modern psychiatry) who, two centuries ago, started the profession off
on the right foot by releasing the mentally ill from their chains.
landmark book “The Myth of Mental Illness”, written one half century ago,
contained a crusading Bill of Rights for psychiatric patients. He argued
passionately for the dignity and freedom of choice of mentally ill inmates who
were then often warehoused for life in hospitals that were aptly compared to
snake pits. Allen J Frances M.D posed to Tom a hypothetical in which his son
was having a transient psychotic episode, was hearing voices commanding that he
kill himself, felt compelled to act on this, and refused treatment. As a
father, would you stand by your libertarian principles or protect your son from
himself, even if this required coercion. Tom smiled ruefully and said: “I
am a father first and protector of human rights second.
story begins as a young man from Ohio. I was born in a small football city. So
much so, that all of the little boys are born with small orange and black
footballs in their cribs! I was very active in sports and performance in
school. An aspiring actor as it were. The town I was raised in was also known
for being a city of parties in addition to having a talented football team.
teenage years were filled with parties, alcohol, marijuana, girls, and excitement.
But my relationship with alcohol and marijuana were anything but standard. I
found myself using pot every day habitually and drinking on the weekends in
excess routinely. This carried into my early twenties. Being a workaholic in
addition to an addict eventually caught up to me. I had a mental breakdown in
the workplace, which lead to me checking myself into a psychiatric hospital. I
was diagnosed as having bi-polar disorder and was later diagnosed as having
forward to the age of twenty-five. At this point, I was prescribed medication
to take care of my symptoms. However, I chose to forgo my medication in favor
of self-medicating with marijuana. The marijuana only perseverated my symptoms
as I began to experience auditory hallucinations and delusions. One day, while
I was in a moment of delirium, a relative and I got into an altercation that
resulted in me hurting the other person. I was arrested and eventually
sentenced to stay at the Arizona State Hospital for a very extended period of
was at this point that I had a choice to make. I could retreat and isolate back
to my room where I could wait out my time – only to be released and continue my
tragic cycle. Or I could make the best out of a tough situation. I chose the
latter! First, I chose to take college courses while in the hospital. I was one
of only three people who had ever finished their Associates degree in the long
history of the State Hospital. Then I opted to join the Arizona State Hospital
Human rights committee along with being a representative of the Community
Reintegration Unit to the hospital administration during my stay. I was able to
assist in reaching agreements for new privileges for us, the patients on my
unit. When I was awarded access to passes to the community, I found a job at a
local hobby shop where I worked during the day and then returned to the
hospital in the evening. And I also received my Peer Support Specialist
Certification and CPR certification from Hope Lives – Vive la Esperanza.
Additionally, I became involved in Alcoholic Anonymous and found a sponsor who
walked me though the principles of the program. My goal became to leave a
legacy for the other patients to follow and model hope and recovery for them.
I was released from the hospital I was destitute. I relied on the kindness and
guidance of my relatives, friends, sponsor, and clinical team. Eventually, my
journey lead me to MARC Community Resources where I got involved in the Work
Adjustment Training Program. I started in the classroom, teaching vocational
skills to the other members. Eventually, the coordinator was impressed enough
with my skills to hire me on as staff for MARC! This was a windfall for me. I
continued to teach in addition to supervising the participants of the program
at the St. Mary’s Food Bank in Phoenix. I found my skills rapidly growing –
both as a teacher and advocate as I became a member of the AHCCCS Behavioral
Health Planning Council. Later, I was promoted at MARC to become the Peer
Support Training Coordinator and Trainer. I am currently the trainer along with
my co-facilitator Bruce Purcell. I still teach vocational skills and I also
have the privilege of bringing the Work Adjustment Training Program to the
patients of the Arizona State Hospital as a representative of MARC… life really
has come full circle!
short, my experience in the hospital was a blessing in disguise for me. I
learned more about myself and my illness while in there than I ever did in the
community. And I used the resources available to me to help others and live
comfortably. Truly a life changing experience.
would say that at the time I would not have voluntarily entered into treatment,
even while on COT, I still did not believe I needed to take medication or stay
in treatment facilities that were open. I would just run away due to my
impulsiveness. I experienced homelessness, arrest for sleeping in an apartment
complex recreation area, and was generally scared all of the time. I felt
people were trying to control my mind and had delusions about people and the
environment. Eventually I ended up in a situation that could have gotten me
killed, I broke into a apartment to stop the voices that were tormenting me
through the walls.
in ASH helped me because I was away from the chaos for a long enough time, so I
was able to think clearly. It was good to live in an environment where I could
spend money at the bank, go to the café or store, do artwork in the studio,
work part time and have a girlfriend. It was then I was able to realize what
life could be like if I just took my medication and stayed off illegal drugs.
All of the staff were very supportive and encouraged me to keep up the good
behaviors, so I would not have to return to a locked down Level 1 hospital. I
have not been in the hospital for four years, that is an all-time record for
me. Since my release in 2015, I was able to repair damaged relationships with
my siblings once I was stable and now have a good life. I hope everyone has the
same opportunity as I had to recover in a safe place, so they can learn how to
take care of themselves and learn to live again. I feel I was given a new chance
at life, I am blessed.
day several years ago a therapist escorted me to the ER for a mental health
evaluation. With my refusal for
treatment and promise that I was no longer suicidal, I was released. But my delusional thinking had convinced me
that I was to die by suicide on that day.
I wanted nothing to stand in the way.
So, when I left the ER, I attempted to take my life. Three days later, I
woke up handcuffed to a hospital bed. I was angry to still be alive. I was
admitted to a psychiatric unit without my consent.
forced into treatment in a locked unit. It was not just the 72-hour hold, or
until my medications were stable, but it was long enough for me to receive and
begin treatment. Long enough for the doctors to really see what was going
on. Long enough for me to be clear
enough to participate in my own recovery. Most important is that today I can
share this incident, because they protected me from myself, against my then “Better
now a small business owner.
treatment saved my life!
the past two years our daughter was living homeless on the streets of downtown
Phoenix. She was in and out of psychiatric hospitals and arrested on numerous
occasions due to acts consistent with mental illness and substance abuse. Her
stay in psychiatric hospitals had been at the most 7 days but most of the
time 3-4 days. Once she was held over night and then released to the streets
again to repeat the cycle of behaviors that had caused her to be picked up in
the first place. There was almost a weekly “event”. She refused treatment
of any kind and refused to live with us where she would have been safe and been
taken to counseling, doctors, and therapy. Police officers often told she
needed mental health treatment. We had been told over and over that there was
nothing we could do until she said something or did something that was a threat
to herself or others and that she needed to hit bottom. However, the bottom is
often death for the individual or others.
became very clear to us that she was going to die on the street if we did not
do something other than what we had tried before. She was being assaulted on
the street repeatedly and was refusing medical or dental help when offered.
Police often found her face down in warehouse lots or in makeshift box houses.
took us acquiring a lawyer and learning about PAD (persistently and acutely
disabled diagnosis) in order to start the process of getting her in a position
to be helped. We also were given guardianship. For the first time, she was held
at the psychiatric hospital long enough to not only stabilize, but to also be
given the correct medication. She was there for about a month.
the first time in many years, she is living with us and she is emotionally
stable. She has continued her meds and is cooperative and pleasant to be with.
She has rejoined our family and is trying to pursue employment.
treatment saved her life. It has never been our intent for her to be locked up
forever or longer than necessary. Without getting the proper psychiatric care,
she was getting locked up anyway in the jails where her mental health needs
were not being addressed, but exacerbated Often, she was put in solitary
hope that changes will be made so that the mentally ill will be treated with dignity
and provided the help that would most benefit their recovery. Long term,
secure care is often needed in order to save their lives and provide them the
time to be properly diagnosed and recover.
it were not for involuntary court ordered treatment, I believe my son would not
be alive or minimally incarcerated today.
However, this is a happy story, because I was able to push through all
the barriers that were stopping me from getting him the help he desperately
needed and deserved.
not everyone has someone in their life that is willing or able to do what it
takes to push through the bureaucracy to get the treatment that their loved one
are laws on the books that allow for involuntary treatment for those suffering
with mental illness, in most states.
However, in 13 states, including Arizona, if someone is presenting with
the signs of mental illness and also suffer from addiction, the doctors have
got to decide if it is the drugs that is causing the delusions or the mental
illness within the first 24 hours of being held.
is no legal way to proceed with court ordered treatment for someone who is
suffering with substance abuse disorders, in Arizona.
son is far from this man that he had become when he was not properly medicated.
He is almost the complete opposite, as a matter of fact. He had been a top selling waiter in fine
dining restaurants for many years and a very kind soul. He had a mental breakdown and I needed to
help him and I couldn’t.
though he was presenting with extreme manic grandiose bi-polar symptoms and
posting disturbingly violent comments on the Internet, my son was aware enough
to share the keywords that the medical professionals needed to hear: “I am not a danger to myself or to others
Psychiatric Care Center also knew that my son had a previous history of
substance abuse. Because of this
history, the social worker told me that he would be released without treatment
or further observation. I was astounded
and a bit hysterical, because I was so frightened for my son’s life and they
would not help me help him.
was also maddening is that when I asked the doctors and social workers to look
at my son’s internet posts, they refused to do so, saying that it is considered
hearsay, because they can’t prove that it was him posting. They also said that they were not allowed to
look at social media posts and signed documents that restricted their viewing
of their patients posts due to some HIPAA laws.
It is mind boggling, in this day and age, that our first line of
defense, the psychiatric units and social workers are not allowed to utilize
social media to help diagnose serious mental illness issues.
my opinion, the medical providers should be our first line of defense (red flag
watchers) for protection to the community and first line of offense and
protection of that person that is suffering from mental illness and/or
substance abuse disorders. These people
need treatment, not prison!!
took me four handwritten 6-8 page petitions to get my son, Eric the help he
needed Each time, the police had to go
pick him up, which is frightening in itself and each time the medical
professionals/system would release my son back on to the streets.
was about 1.5 weeks’ time, many phone calls, emails and faxes in order to get
my son admitted for treatment. It was
not until I contacted my Congressman’s office, did I get my son admitted into
the Urgent Psychiatric Care Center for
you don’t have guardianship and you are a parent of an unmarried adult child,
it is even harder to get help because of the overly restrictive HIPPA
laws. Sure, if your loved one is sane
and able, they can sign papers giving you the right to help, but even that is
had all 3 Powers of Attorney, which included mental health Power of Attorney to
help get my son the treatment he needed, involuntarily, and I could not get him
treatment. I learned the hard way that
the psychiatrist would not deem him “incapacitated,” so my Powers of Attorney
were useless when I really needed them.
son, Eric, did not want treatment. He
did not think he needed it. He had no
idea what was happening to him and he was in complete denial that he had any
problem at all. The doctors chose not to
help him get treatment for whatever no good reason they could or had to come up
was horrible, seeing my child, even at age 30, fall away from me and all my
efforts to get him back to safety and sanity was being turned away. In my opinion, if anyone thinks that it is
easy to get help for those who want it, either voluntarily or involuntarily,
need a system in place that allows for involuntary treatment to occur with much
more ease than it does today. We have an
epidemic across America with approximately 200 people every single day dying
with issues related to mental illness and substance abuse disorders.
and with much perseverance, after 8 months of in-patient and 3 months of
out-patient treatment, my son, Eric is doing better than ever because of the
Involuntary Court Ordered Treatment that I was finally able to get for my
am one of the lucky ones. He is still
alive, healthy and his mind is stabilized again.
are no more delusions or voices, he quit smoking, he is looking to go back to
school to finish his degree and is committed to sobriety… because of
involuntary court-ordered treatment.
over time, has gained the insight to value his freedom and sobriety and
understand his mental illness more than I’ve ever seen before and it has been a
long time…15 years. This Involuntary
Treatment program is what seems to be working better than everything else we
I asked Eric about this article and how he felt about involuntary court ordered
treatment, he said at first, he felt like he was backed into a corner. It was hard to accept that he was ill. He also believes without the ordered
treatment he would not have sought treatment on his own and certainly not be
doing as well as he is today.
Eric’s words he “now has hope he can become the man he is
capable of being. “
Treatment works. With more funding for
facilities and streamlining these judicial and medical processes, loosening up
the HIPAA laws to common sense laws, those suffering with mental illness and
substance abuse disorders will be much better off than if they we do nothing at
all and so will our society. We will
save lives…lots and lots of lives and many have, can and will become healthy
contributors to society.
Dick’s family story:
My son has schizo-affective disorder. He sometimes neglects his medication when his
illness interferes with his comprehending the need for medication. He places himself in harm’s way without his
meds. So, his family, clinical team and
psychiatrist have asked judges to place him on court ordered treatment (“COT”),
a legal and enforceable obligation to allow monthly injections of
These injections can ameliorate his symptoms (voices,
delusions, etc.) to varying degrees depending on the culture of his living
arrangement. For many years he has lived
in various group living and treatment facilities, most of which have been
“program-centered”, i.e. the patient must adhere to strict program protocols or
be ejected, which can result in living in the streets, “halfway houses” or even
jail (these places have been part of his lived experience). Persons whose mental illness is chronic often
cannot adhere to such protocols due to the severity of their illness. COT loses much of its value in a
“program-centered” culture or in the streets or in jail.
He now lives in a group home operated by an agency with a
“person-centered” culture (all agencies will claim to be “person-centered”, but
most are not). This agency uses program
protocols as “guidelines” rather than strict rules, tailors treatment to the
needs of the individual and does not eject patients for non-adherence to
rules. COT and other treatment elements
are much more effective in a “person-centered” living arrangement operated by
an agency with an explicitly “person-centered” culture, where such culture is a
reality rather than a slogan.
The Association for the Chronically Mentally Ill (“ACMI”) is
helping to develop “court ordered places” where chronically afflicted
patients can receive long-term care, tailored to their individual and varying
needs, as an alternative to the streets or jails – to fill a glaring gap in our
“continuum of care”. Meanwhile, ACMI can
help families identify agencies with “person-centered” cultures most helpful to
their loved ones with chronic mental illness.
Dick Dunseath, Board member Association
for the Chronically Mentally Ill
to the Treatment Advocacy Center, “The United States is
in the midst of a psychiatric bed shortage that worsens every year. By early
2016, the practice of closing state mental hospitals, often called
“deinstitutionalization,” had eliminated more than 96% of the last-resort in-patient
psychiatric beds that existed in the mid-1950s; after a brief period of expansion
in the 1990s, private hospitals, too, are shrinking their psychiatric in-patient
capacity. The consequences are many and far-ranging, yet most states continue
to decrease the number of state hospital beds they supply per capita and,
because of financial disincentives, private and other inpatient-service
providers are not stepping in to replace those that are lost. Despite
widespread consensus that “more beds are needed,” neither the United States nor
its individual states have conducted research to establish evidence-based bed
supply ranges. The Treatment Advocacy Center in 2008 published the most
commonly cited bed target in the United States — 40 to 60 beds per 100,000
people — but no official effort has been made to validate or revise this number.
New computer modeling holds promise for developing evidence-based targets in
In 2008, the Treatment Advocacy Center
published a study that included a safe minimum number of public beds for
adequate psychiatric services per 100,000 populations. Estimates were solicited
“from 15 experts on psychiatric care in the US, [including] individuals who
have run private and state psychiatric hospitals, county mental health
programs, and experts on serious psychiatric disorders.” Participating experts
were asked to estimate beds for children and forensic (criminal
justice-involved) patients, as well as civil, adult patients. An estimated
range of 40-60 public psychiatric beds per 100,000 people emerged, with a
consensus around 50 beds per 100,000 population. Across the 34-member
Organization for Economic Cooperation and Development (OECD), to which the
United States belongs, the median number of psychiatric beds per 100,000 people
in 2014 was 68 beds. This suggests
that international policy and practice are operating slightly above the upper
end of the consensus range.
is Arizona doing?
Public Psychiatric Beds in Arizona
A minimum of 50 beds per 100,000
people is considered necessary to provide minimally adequate treatment for
individuals with severe mental illness. Like every state, Arizona fails to meet
this minimum standard.
Overall Arizona has
a very low number of State Hospital beds per capita – the number of beds
available to those in Maricopa County borders on the absurd. In Maricopa County
– where 61% of Arizona’s population
resides – we have 1.2 beds per 100,000
(55 beds for 4.3 million people). This is unthinkable. This creates an
extreme risk for our community. Trying to treat people in the community who need inpatient,
longer term care for stabilization and to get on a solid path
to recovery, is exponentially more expensive and inhumane.
They cycle in an out of hospital ERs, jail, and prison with episodic
or no care.
According to one local provider when
analyzing population health data, of the 1,000
in-patient hospitalizations last year, a small number of folks (147) were responsible for most repeated
We do not have enough long-term beds. In
Arizona the only current program/facility that provides for longer term care
for individuals with a chronic mental illness is the Arizona State
Hospital. The hospital has a limit of 55
beds allocated for Maricopa County based on a long running lawsuit (Arnold v
Sarn). Maricopa county is the most populous county in AZ. The other inpatient facilities are designed
for shorter term stays many of whom are Institutes for Mental Disease or IMD’d
that have a length of stay limit of 15 days.
While many people can become stable in a 15-day period, many require
longer term care to achieve stability.
For someone that is homeless or lacks other resources or supports, its
challenging if not impossible to put these resources in place in that time. The result is that many people have repeat
admissions to community inpatient settings where if they had the length of stay
necessary for them to attain stability, their recovery would be more likely.
Other psychiatric hospitals generally
have ultra-short hospital stays for patients who do get admitted to turn beds
over. These short-term hospitalizations are far too short to effectively
stabilize persons with the most severe psychiatric symptoms.
due to lack of public long-term psychiatric beds:
Many emergency room visits where patients
may be boarded awaiting availability of an in-patient psychiatric bed
Arrests for crimes related to their
untreated or undertreated mental illness
Acutely ill individuals left untreated to
suffer consequences that are often dire and sometimes fatal to themselves or
Chronic homelessness (up to 40% of
chronically homeless people also are persons with mental illness)
Prevalence and Treatment Rates
(nationwide)* (Treatment Advocacy Center)
8.3 million adults with schizophrenia or
bipolar disorder (3.3% of the population) +
5.5 million – approximate number with
severe bipolar disorder (2.2% of the population), 51% untreated+
2.8 million – approximate number with
schizophrenia (1.1% of the population), 40% untreated+
3.9 million – approximate number
untreated in any given year (1.6% of the total population) +
Consequences of Non-treatment*
169,000 homeless people with serious
383,000 inmates with mental illness in
jails and prisons
50% – estimated percentage of individuals
with schizophrenia or bipolar disease who attempt suicide during their
44,193 suicide deaths in 2015
10% – estimated percentage of homicides
involving an offender with serious mental illness
(approximately 1,425 per year at 2014
29% – estimated percentage of family
homicides associated with serious mental illness
50% – estimated percentage of mass
killings associated with serious mental illness
Numbers and percentages of US adults
Institute of Mental Health, 2016
Annual Homeless Assessment Report
What can we do?
ACMI advocated for and won legislative
victory dedicated to expanding the continuum of care in Arizona to include
secure residential treatment in the community. This level of care can satisfy
the required longer-term stabilization once a patient is no longer medically requiring
a level 1 in-patient psychiatric stay. Secure residential treatment facilities
are a new addition to the continuum of care, not a replacement or alternative
to short term in-patient psychiatric hospitals like Desert Vista or a long-term
facility like Arizona State Hospital (ASH).
There already exist secured residential
treatment settings in AZ, e.g.: for adolescents. This year’s legislation
and subsequent new licensing will permit similar recovery-based treatment for adults
that have been unsuccessful with the current behavioral health treatment
Who is the target population for secure
of the target population for Secure Treatment Facility:
Have failed at treatment in unrestricted
All referrals should have serious mental
illness too severe to live with family or friends.
Failed multiple attempts at living
May have been unsuccessful at other
programs and housing settings.
Have had many contacts with fire
paramedics, police and the judicial system.
They also may suffer from addiction which
often is grounds for eviction from other programs.
The target population may improve under
supervised treatment, but often relapse when released too soon to have
benefited from a long term supportive and therapeutic environment.
persons considered for Secure Residential Treatment will have a court
proceeding with counsel.
ACMI board members are committed to the
recovery model and believe that all individuals that have been unsuccessful in
the current offering deserve a chance for recovering in a safe setting.
Well known journalist and author Pete Earley published the
following blog about ACMI board members’ story.
(3-1-19) We spend much time, money and effort fighting stigma.
Charles Goldstein, a parent of an adult son with a serious mental illness, a
doctor and a mental health advocate recently questioned the value of such
efforts. Put simply: Is it worth our time and money? Here’s a copy of a
speech that he gave before the Council for the Advancement of Global Mental Health
Research at Columbia University.
Mental Illness, Stigma
To whom it may concern (and I believe that would be everyone).
My name is Charles Goldstein, I’m a retired emergency physician
who’s worked in Phoenix Arizona in a busy metropolitan ER for over 40 years.
I’ve worked with the mentally ill who were brought to or dropped off at my
emergency room, usually inappropriately, because that’s one of the least
helpful environments people with mental illness can be in. Almost none of the
time that I was dealing with people with mental illness was I treating them,
but more was trying to facilitate an appropriate discharge from the ER to
someplace that might help them, a Herculean effort in and of itself. In
addition, I have had the good fortune to work with very dedicated people
striving to help people with mental illness. For the last 4 – 6 years or so I
have become quite involved with organizations that do this good work; through
this experience and because my wife, Laurie, and I personally have raised a
child (now man) who has serious mental illness, I have a few things to say on
Mental illness, and particularly serious mental illness, afflicts an awful lot of people.
About 20 to 25% of the total population of the US has some form
of identifiable mental illness and approximately 3 to 4% of the population have
a serious mental illness such as schizophrenia, bipolar disease, or clinical
depression. While there are many medications and forms of therapy which can
help people with mental illness, none of them actually cure the disease. There
are many problems that beset people with mental illness, but I believe in
general there are two problems which the people who have various forms of this
disease have in common in dealing with our society. These are ignorance and
We believe we have come a long way in reducing societal
ignorance when it comes to mental illness.
Even as little as 50 to 60 years ago nobody, or very few people,
had any idea that this was actually a chronic illness much the same as, say,
chronic obstructive lung disease, diabetes, or chronic renal disease. I believe
we’ve come a long way in recognizing mental illness as a chronic, as yet
incurable, disease much like the diseases I’ve mentioned above. Combating
ignorance about mental illness with educational programs and the like have made
good headway in raising awareness and understanding for the unfortunates with
this chronic illness; but, nonetheless, to compare it with the chronic diseases
listed above is not a good analogy because there is another aspect of society’s
attitude towards mental illness, and that is the problem of STIGMA.
Why, indeed, is there stigma involved with the disease of mental
illness, but no stigma involved with the other chronic diseases that I’ve
mentioned above such as diabetes?
I believe that the reason for Stigma has to do with the
symptomatology. People with diabetes, heart disease, renal disease exhibit
symptoms as well as those people with mental illness, however these disease
elicit only sympathy from members of society. The symptoms of mental illness on
the other hand are at best alarming to members of society and at worst
frightening. A more accurate analogy would be to consider the disease of
Leprosy is a contagious disease caused by the organism
mycobacterium leprae. It is still endemic in some areas of the world to this
day and can causes severe dysfunction in those individuals unfortunate enough
to have it. While it is more or less easily cured today by a multi
antibacterial regimen, 100 years ago or so this was an incurable disease and
the disgust and the revulsion that society felt towards those people who had
this disease caused them to isolate them and in some cases like that of Hawaii
to restrict them to live on an isolated island. The stigma attached to leprosy
was based on the disgust and revulsion people felt over the disfiguring
symptoms of the disease. The stigma attached to mental illness is based on the
symptoms of bizarre behavior which cause alarm and fear.
No amount of education was going to
change society’s outlook on lepers, and though we try mightily it is very
difficult to change society’s mind over the way it feels about people with mental
That is not to say that organizations who do great work trying
to reduce stigma should not continue to do that work because I believe it does
help to some degree. However, in the case of leprosy, the stigma attached to
the disease was overcome by finding a cure for the disease. I believe that
finding a cure for mental illness will be the ultimate way to deal with stigma.
Because of that I applaud the efforts of everyone to raise money either from
the government, private organizations, individuals, charities etc., but I
believe that the brunt of the money raised from such efforts should be spent on
finding a cure rather than trying to combat the stigma from the symptomatology
of an as yet incurable disease; Mental Illness.
Is mental health stigma overrated? Is it time to rethink
anti-stigma campaigns that are based on the belief that stigma stops
people from accessing services?
I must admit that
I’ve long questioned the use of anti-stigma campaigns — fearing they do little
to help people with mental illness. They have however become an industry. How
about we instead put the money into services?
Isn’t a secure residential treatment facility just a “mini” hospital? No. Secure residential treatment facilities are a new addition to the continuum of care, not a replacement or alternative to short term inpatient psychiatric hospitals like Desert Vista or a long-term facility like Arizona State Hospital (ASH).
treatment is intended to serve individuals who need around-the-clock, close
supervision and support by staff with behavioral health training to ensure the
individual takes prescribed medication and receives support services.
Individuals would be court-ordered but, also, screened by clinical staff
before acceptance to exclude those with assaultive or significant self-harming
behavior. The reason the place needs to be secure is because the
residents would leave if it was not.
Won’t a secure facility
have to look and run like a “mini hospital”?No. Clinical screening of residents prior to
acceptance into the program will permit a residential setting to be more
like a home then a hospital setting, therapeutically beneficial for
residents, and safe for staff and residents.
Patients having severe
enough psychiatric symptoms that they are violent towards themselves or
others do not belong in a secure residential facility and would not be
accepted. These individuals need to be in a Level 1 hospital
environment. For example, violent
patients can not have access to items that they can use to do harm. Furniture
must be too heavy to throw; glass in the windows must be shatter-proof; fixtures must be anchored so they do not allow a
person to hang himself; toilets must be made out of unbreakable materials, etc.
These environmental modifications are costly, and the specifications are
constantly updated so that they need to be replaced. In addition, safety
requirements also affect the patient’s daily life and comfort. Women are not able to wear a bra due to
hanging risk; others cannot access computers or other items that are breakable
and can be used to create sharp objects for use as a weapon or for self-harm.
Residential treatment facilities will not have these features because the
residents accepted do not require these restrictions.
Are you concerned about
safety and potential violence in secure facilities? Of course. However,
a secure residential treatment facility can be safe for staff and residents in
four ways: (i) screening of admissions,
(ii) an adequate number of trained staff, (iii) a safe physical environment,
and (iv) appropriate policies for situations when a resident becomes upset and
potentially assaultive or violent.
Getting people to be
adherent with treatment is the first step to reducing violence. We know that much of the violence by
individuals diagnosed with SMI is by individuals who are not in
treatment. The clinical staff of the
secured residential treatment facility must appropriately screen individuals
referred for admission; a primary goals of screening is to determine if someone
is too violent or at too high a risk of self-harm to be admitted or to
remain. To the extent that proposed
residents have been off their medication for a period of time and are highly
agitated or aggressive, they would need to be stabilized first in an acute care
setting before being considered clinically appropriate for secured residential
treatment; in addition, the facility would have criteria for admission which
would screen out those who have a history of significant violence towards
others even when taking prescribed medication for their psychiatric condition.
it is one thing to have
someone who is verbally threatening but doesn’t act on it, or someone who does
minor destructive things when angry (for example, tearing papers off a bulletin
board or slamming doors). Some individuals may engage in self-harm behavior
like scratching. All these behaviors are
manageable in a residential level of care.
However, if the person’s behavior is so disturbed that he or she is
engaging in serious assaults or self-harm, it is a mistake to try to manage the
person in a setting not built or staffed to prevent significant property destruction, self- harm or harm to others. This is why it is essential
to have clear criteria for admission to a residential treatment facility.
It is also why such a facility will not take the place of psychiatric hospitals
or Desert Vista or ASH (though it is
likely that some patients who currently spend long periods in these hospitals
could be appropriately treated in the less restrictive setting of a secured
residential treatment program). It also is possible that a patient could
do well in the program for months and then
have a deterioration, which would require hospitalization and a return to
Will restraints be used?No. Residential treatment
facilities cannot use physical, mechanical, or chemical restraints.
The only thing
residential treatment facilities can use is an Emergency Safety Response, which
involves subduing a physically aggressive person to protect staff and other
residents from injury. If a resident becomes physically aggressive
towards others (staff or peers), and it is ongoing, police have to be
called. If the person is under Court Ordered Treatment, the court order
can be amended to admit the individual to the hospital again. If there is
evidence of dangerousness to self or others, the police can immediately detain
the resident and transport him or her to one of the local psychiatric crisis
centers. Any individual demonstrating significant aggressive behavior which
poses an imminent risk of serious harm to others and is unresponsive to less
restrictive interventions belongs in a higher level of care where restraints
can be used safely to protect the patient and others.
residential facilities have “security”?Yes,
of varying types consistent with licensure provisions.
These are intended to be residences
– not prisons with barbed wire and bars.
The perimeter of the property has to be secure, just as are most schools
today. Electronic security can be used
too — alarmed doors, a sequence of doors, motion detection and monitoring,
etc. Security staff may be available to
assist everyone in staying safe.
How will someone
be sent to a secure setting and how can they get out?Similar to the way they
To be admitted to a
secure facility will require that the proposed resident be receiving mental
health treatment under a court order and that the judge specifically order secured
residential treatment based on two important procedures: (i) the clinical team
must provide an affidavit with evidence that this is the most appropriate and
least restrictive placement, and (ii) program staff at the secured residential
treatment facility, must accept the person based on the staff’s judgment that
the facility is appropriate for the individual and can safely meet his/her
needs and is appropriate for the person’s needs. Those admitted would need to
be found by the judge to meet strict criteria indicating that they require
treatment in a secured setting, based on prior failure to improve in intensive
unsecured treatment settings due to non-adherence with treatment
recommendations, or current evidence that the person would not comply with
treatment in such a setting. After admission, there must be continual
monitoring of the appropriateness for continued stay, with clear treatment
goals and criteria for discharge to a lower level of care. Providers and the individual, family, or
guardian can petition the court at any time for discharge to a less restrictive
level of care as they can do so today. Providers also can petition the court at any
time for transfer to a higher level of care.
be subject to forced medication?Only as part of a
court-ordered treatment (COT) plan – just like today.
In Arizona, once a court
has ordered treatment, medication can be given as part of the treatment plan
developed by the treating psychiatrist and approved by the medical director of
the treatment agency. Only patients under
COT, or those with a guardian consenting to treatment, can be required to take
medication. We must rely on the judgment of the clinical team as to when and
why to ask for COT.
have input into their treatment plan?Of course, that is
essential for self-guided, self-directed recovery.
The treatment team and
the person will develop an individual treatment plan (ITP) just as they do
today. The goal is to achieve better
participation in development of and adherence to the ITP by having somewhere
stable for the person to live with 24-hour services and support. The goal is to provide support and safety
during the early stages of recovery in order to provide the best opportunity
for success with a self-guided and self-directed recovery.
What happens if someone
tries to escape, demands to leave, or leaves?“Escape” is the wrong term. This is not a jail or prison. It’s a
residence for treatment. Staff would try to
persuade the resident to stay and, if unsuccessful, call mobile Crisis Services
or the police and then take appropriate action. Because all individuals
will have a COT order indicating that they are required to reside at the
facility for treatment, the alternative to leaving is a hospital setting.
The focus is always is
on getting the resident clinically indicated and appropriate treatment and
services. Every resident has the due process right to seek to move to a less
restrictive level of care by working with the clinical team or by petitioning
the court which issued the resident’s commitment order.
If a resident nonetheless demands to leave or evades
the program’s security measures and is able to leave, staff could pursue an
amendment for inpatient care, if justified, or a “pick-up” order. This is the same process that is followed
The facility files an “amendment” to the original court order, and the police
pick up the person and bring him or her back to the facility. Repeated
departures like this may indicate a need for a higher level of care.
difference in civil commitment to the State Hospital and commitment to a secure
They are totally
different types of facilities. Our laws
can accommodate both. Secure residential
facilities will add community beds in a far less restrictive setting than the
State Hospital or our screening agencies like UPC, RIAZ or CBI, or our
evaluation facilities, Desert Vista Hospital, the Behavioral Health Annex at
Maricopa Medical Center, and Maryvale Hospital.
Secure treatment will
fill a gap in the continuum of care and housing in order to prevent
individuals with chronic SMI from falling through the cracks and ending
up civilly committed in our State Hospital (for over a year, usually), or worse — becoming incarcerated in jail
and prison because of crimes, sometimes heinous ones like assault or murder, but
more often nuisance crimes arising out of homelessness and poor judgment caused
by active psychosis. Currently, due to a mandated cap on the census at the
State Hospital, many patients are staying for months at an acute care
psychiatric hospital which was not built for these long-term stays.
Can a family member,
or guardian admit someone to the secure residential treatment facility? No. A court always is involved and must order
The family member and/or
a guardian may be involved and give evidence.
But a doctor also is involved and must make the recommendation based on a
Will a court order
someone committed to a secure facility for a set period of time? Yes, as currently happens
for all court ordered treatment (COT). .
The COT time period is
typically one year, but that is always subject to recommendations of the
clinical team as required by Olmstead and due process rights. There must
be periodic reviews and the ability to petition to be discharged. We are comfortable with the concept of a
secure residential treatment facility because of the all of the licensure rules
and due process protections built into our system.
Will secure residential treatment facilities have to comply with fire codes?Of course. Secure residential facilities will be licensed and through that process must continually comply with all state, county, and local codes. There are multiple kinds of health care and residential facilities that are secure, for example, assisted living facilities, nursing homes, dementia facilities, and therapeutic schools.