Cheryl Roberts of the Greenburger Center for Social and Criminal Justice has been working for many years to provide an alternative to incarceration for individuals that are treatment resistant.
“For those who refuse treatment, like Santos, the default is often the streets. Yet undeterred by this reality, the public fails to fund robust supportive housing and some officials and advocates still fail to acknowledge the value of court-mandated treatment or admit that we need to develop a wide variety of intensive supported housing and yes, some involuntary commitment beds to deal with serious cases, at least until they are stable.” Cheryl Roberts
Stories like this are happening too frequently for individuals that are not treatment adherent. Leaving untreated psychosis can have a dire impact on the individual, their loved ones, and their community.
ACMI is advocating that all individuals deserve a chance for a life with dignity. And we believe that until there is a period of stability in a safe recovery-based environment, recovery is unlikely to begin. Individuals that are treatment adherent tend to have trust with their treatment teams and a support system that works for them. Secure residential treatment is not for individuals that are adherent to their treatment.
Secure residential treatment is also not intended for individuals that have encountered a setback with their illness. It is for those individuals that have been highly unsuccessful with the current system, systems where they walk out because they do not believe they are ill. We believe that this is not a permanent placement for individuals, but a temporary arrangement to gain insight to start on a path for long term stability and a move towards more independence. The opponents of this philosophy offer no solutions for this segment of the population. Providing the same ACT team, peer support, and community living does not work for someone that is highly psychotic and lacks insight. Remember the definition of insanity- doing the same thing and expecting different results. ACMI strongly believes that providing secure residential treatment will provide a valuable missing service.
Few are guilty, all are responsible: How to fix a system that let a homeless man kill four other homeless men on New York’s streets
By Cheryl Roberts New York Daily News
Oct 10, 2019 | 3:01 PM|
As a former town judge and current bond agent for the Columbia County Bail Fund, I bristle at reports blaming the recent deaths of four homeless men on the Bronx Freedom Fund for bailing out the suspect, Randy Santos. I also bristle at those who point the finger at the Brooklyn judge who tried to divert Santos into mental health treatment after an earlier arrest rather than locking him away.
Like appears true of Santos, approximately 90% of the people I have bailed out have a mental illness and or substance use disorder. And while our bail fund’s volunteers go to incredible lengths to ensure our clients are connected to services, sometimes services are not enough, especially when someone refuses treatment or does not comprehend that he is seriously ill.
As a local judge in upstate New York, I had no good options to address the needs of people living with serious mental illness. Though New York City judges have more options, they are not mental heath professionals and cannot supervise a defendant once he or she leaves court. Yet judges are left to develop “treatment plans” and evaluate sometimes unknowable risks about mental health conditions and potential violent outbursts in a field where medications have not fundamentally changed in the last 30 years, basic scientific funding and research has lagged, and even seasoned psychiatrists would have a hard time diagnosing these defendants, a population, along with the homeless, many psychiatrists avoid at all costs.
Attempts to lay blame on the district attorney for failing to be tougher toward Santos may also be misplaced. Under the status quo, whether a DA diverted Santos or prosecuted him for previous charges, it’s quite possible that neither would have done justice, made the community safer or avoided tragedy. At some point, Santos would have re-entered society, most likely the worse for wear, after spending time on Rikers.
If blame is to be laid, it should start with the public and elected representatives, especially federal officials, who failed to fund mental health services or research for decades. That’s the real root cause of this problem.
According to the National Alliance on Mental Illness, between 2009 and 2011, states also cumulatively cut more than $1.8 billion from their mental health budgets, with New York State scoring the second largest cuts in the nation, totaling $132 million. Perhaps it is not surprising then, that between 2009 to 2018, the city’s 911 calls involving “Emotionally Disturbed Persons” rose from 97,132 to 179,569.
Ironically, the mental health profession and certain mental health civil rights organizations are also at the core of our unraveling mental health system. Where has the American Psychiatric Association been for the last 30 years as their most ill patients have been criminalized or driven to homelessness?
And shame on groups that still advocate for complete deinstitutionalization, who refuse to acknowledge that mental institutions never really went away, they just morphed into two types: posh mental health facilities costing thousands of dollars a month, or prisons and jails which cost just as much but often deliver poor treatment, if any.
For those who refuse treatment, like Santos, the default is often the streets. Yet undeterred by this reality, the public fails to fund robust supportive housing and some officials and advocates still fail to acknowledge the value of court-mandated treatment or admit that we need to develop a wide variety of intensive supported housing and yes, some involuntary commitment beds to deal with serious cases, at least until they are stable.
Until the public stops stepping over people like Randy Santos and demands that our tax dollars fund a public health system geared toward the most ill and potentially most dangerous, there will be more tragedies like last week’s.
Let’s start by building on, rather of tearing down, the work Thrive NYC has done to raise awareness about mental illness and instead direct more Thrive funding to the most seriously ill. Then, over the long term, we must insist that funds to build new jails are at least in part spent on the real needs of those living with serious mental illness and substance use disorders.
Roberts is executive director of the Greenburger Center for Social and Criminal Justice.
We mentioned Trieste Italy in an earlier blog. How are People with Serious mental Illness Faring in our Jails? Trieste is a city and a seaport in northeastern Italy. The metropolitan population of Trieste is 410,000, with the town comprising about 240,000 inhabitants. Trieste has a culture that embraces its most vulnerable people and, as a community, takes care of them. In 2017 while visiting Trieste Italy, Kerry Morrison, (an advocate in Los Angeles) discovered a unique mental illness community culture.
Kerry Morrison found a mental health culture and treatment model in which every patient was cared for and, no one was left to pitch a tent and fend for themselves. This practice of caring for the most vulnerable is in stark contrast to what we see in America’s largest cities.
I am excited to see if the Trieste model can be transferred to a city the size of Los Angeles. Possibly achievable if piloted in a smaller community neighborhood.
We would like to see all our vulnerable populations housed and treated with respect and dignity.
Kerry Morrison had seen enough. She was not a clinician or policymaker, and she didn’t know what the answers were. But she knew she was looking at failure, and she knew she could no longer ignore it.
All around her, in the heart of Hollywood, people were living in subhuman conditions, sprawled beside storefronts and at bus stops. Their clothing was shredded, their bodies were black with grime, and their unattended madness was a daily indictment of public compassion and will.
“I couldn’t reconcile the sight of cranes, signifying progress, while stepping over mentally ill people on the street,” said Morrison, who was director of the Hollywood Property Owners Alliance for many years, and a decade ago began taking a closer look at the growing homeless population.
I remember wondering briefly, when I met Morrison back then, if she was more interested in cleansing the streets on behalf of the business interests she represented than in helping those who were suffering. But she and I were soon sharing notes on our daily interactions with those who were struggling, and on social workers who against all odds were making a difference.
“I felt called to this,” Morrison says now.
She reached out to professionals, joined boards, helped launch a campaign to identify and help the 14 most dreadfully ill people living on the streets of Hollywood. Morrison researched mental health policy and the history of what went wrong in the United States, and in particular in Los Angeles, where against a backdrop of economic progress and wealth, sick people were living in squalor.
Morrison won a fellowship to further her studies, checked out mental health programs in other U.S. cities, and traveled to a town in Belgium where families “foster” adults with mental illness. Last year, she gave notice to the property owners group that she’d be leaving her job in February to devote her full attention, unpaid, to her cause.
But it was a trip to Trieste, on the uppermost rim of the Adriatic in Northern Italy, that turned her despair into hope. It was there, in the summer of 2017, that Morrison found a mental health model in which every patient was looked after and no one was left to pitch a tent and fend for themselves. And it was there that she began mapping a plan to bring the Trieste model home to Hollywood.
Morrison tells a story about that first visit to Trieste, when she asked a young psychiatrist named Tommaso Bonavigo how he handled one difficult case involving a seriously troubled patient.
“He said he started going out to his house to find him and I said, ‘Excuse me, Tommaso. You went to his house?’” said Morrison. “I said, ‘You know what, Tommaso? I almost wish I hadn’t heard this because the chasm between what you’re doing in Trieste and what we’re doing in Los Angeles seems completely insurmountable.’”
It is, in many ways — especially given the scale of the problem here. But when Morrison got back home, she refused to let the thousand and one challenges cloud the promise of Trieste. There, Morrison had found, the program was patient-based, not bureaucracy-driven. The philosophy was to focus on the person rather than just the illness, to treat people as full-fledged members of the community, address individuals’ specific needs and closely monitor the progress.
One of the first people she went to in Los Angeles was Dr. Jonathan Sherin, the new director of the L.A. County Mental Health Department.
“I told him, ‘Jon, you gotta see this,’” Morrison recalls.
Sherin knew about Trieste but had never been there. He listened to what Morrison had to say, then talked it over with L.A. County Superior Court Judge Jim Bianco. Bianco works in the mental health division and has long been frustrated by the number of sick people who end up homeless, in jail or in psychiatric lockdown because so few alternatives are available.
“Bianco and I … both agreed — we’re going,” said Sherin. “And we went.”
So did 10 other curious locals, led by Morrison, and they liked what they saw. Upon their return, they began pitching others on the wonders they’d seen, and the momentum grew. It was decided that a section of Hollywood, with about 100,000 people, high levels of addiction and mental illness but not as many services as skid row, would be a good place to test Trieste.
But how to pay for a pilot project in L.A.?
Thanks to voter-approved Proposition 63 in 2004, which taxed millionaires, about $2 billion is generated annually for mental health services in the state. Sherin appealed to the Mental Health Services Act oversight committee to take a shot on a new strategy that focuses on outcomes rather than process, and $116 million was freed up from an “innovations” fund.
The deal now awaits a stamp from the county Board of Supervisors.
Two weeks ago, a delegation of three dozen local and state officials and members of nonprofit service agencies went to Italy with Morrison for a closer look. L.A. Mayor Eric Garcetti’s homeless services leader, Christina Miller, went along, as did California Assemblyman Richard Bloom. L.A. Dist. Atty. Jackie Lacey was there, too, along with representatives from the LAPD, the L.A. County Sheriff’s Department, and the office of county Supervisor Sheila Kuehl.
And I tagged along to see firsthand what all the excitement is about.
I’ve written a lot in the last 15 years about what works and what doesn’t, about how our streets were turned into asylums, about a friend I’ve been trying to shepherd through the failing system, and about how we’re now averaging nearly three homeless deaths a day in L.A. County.
In Trieste, I was curious about two things:
How do they do it? And can we replicate it?
The first question, I can now say, is easier to answer than the second.
No magic was involved in Trieste. When mental institutions were closed 40 years ago in Italy — about the same time as in the U.S. — Trieste innovated while the U.S. abdicated, falling miserably short on the promise of community clinics.
Under the leadership of a psychiatrist named Franco Basaglia, Trieste built a coordinated network of treatment centers, embraced patients as full-fledged members of the community, invited family members to participate in their loved one’s recovery, built relationships with employers who hired the patients, and didn’t let bureaucracy or billing entanglements sabotage good outcomes.
When someone has a psychotic episode in Trieste and there’s a call for help, it’s usually a mental health team that responds, not police, and the team often has already built a relationship with the client. At one mental health center we visited, a nurse described a recent event in which she responded to a distress call and spent seven hours with a patient who eventually agreed to come in for help.
The doors of community mental health facilities are not locked in Trieste, and we were told that if patients choose to leave, staff members follow them to make sure they remain connected to help.
Psychiatrists at one mental health center said they had only five cases of involuntary commitments last year. It happens rarely because when people have easy access to regular help and begin to know and trust care providers, they’re easier to treat, and not as inclined to have their conditions deteriorate, or to resist therapy or medication that might help.
As ideal as this all seemed, there were times when Trieste sounded a little too good to be true, and it was hard to know in just five days what the long-term outcomes look like. The program has been criticized over the years, by those who favor more institutionalization, and Italian budget constraints could threaten its survival.
But what we saw was so vastly superior to the bedlam we call a system, I felt a sense of shame when Los Angeles briefly took center stage in Trieste.
Care providers from around the world were in the northeastern Italian city of about 200,000, with daily presentations and panel discussions from attendees, many of whom spoke of innovative programs to help those in need. And then Morrison stepped up onstage with Anthony Ruffin, of L.A.’s mental health department, to talk about Hollywood’s sickest homeless people and the mostly failed efforts to rescue them.
Photos of the Hollywood 14 were displayed on the big screen. A majority of them were African American. They were sprawled on streets and huddled under blankets, like storm refugees or casualties of war. Three of them died, Morrison told the crowd.
She also talked about how we usually have about 5,000 mentally ill people locked up in our jails at any given time.
The conference center fell silent.
In the richest country on the planet, this was the state of Hollywood, the world’s mythical capital of imagination?
It was like seeing our own abominable failure with fresh eyes, and it wasn’t entirely clear that even with a map in hand, we could find our way to a better place.
We have 40 times the population of Trieste and 50 times the challenges.
There was no evidence of NIMBYism anywhere; we’ve got it everywhere.
In five days, I didn’t see a single homeless person in Trieste. Trieste has no drug epidemic, even as ours rages, and it’s harder to help people with both a serious mental illness and a debilitating addiction.
Especially when they live in tents.
The Hollywood pilot will serve those who are housed as well as those who are unsheltered, but there will be legions of the latter. At one point, Miller asked the lead psychiatrist in Trieste — Dr. Roberto Mezzina — his thoughts on treating people with a mental illness who are homeless and may be for quite a while.
“It’s impossible,” Mezzina said.
On one of our days in Trieste, we visited a recovery home where four residents live. Michele, the house supervisor, talked about how he himself once went through storms of depression and had no desire to go on living.
“It’s like going under the sea,” he said.
In the Trieste program he was prescribed medication that helped, he got a job, and for the first time in his struggles with mental illness he saw doctors he believed were truly invested in him getting better.
Michele supervises four residents who are now where he once was. One, who works as chef, was in the kitchen making a birthday cake for another resident, who works as an elder care assistant. I asked Michele what happens if relatives call and ask how the residents are doing.
He reacted as if that were an odd question. They are happy to talk to relatives about clients, he said, “if it’s for the benefit of the person.”
The reason I asked is that in the U.S., laws protecting patient privacy often keep family members in the dark, and we can add this to the list of needed American reforms and challenges for Hollywood.
Also, Trieste has no shortage of mental health facilities for its clients, no matter the severity of their illness. We have epic shortages of everything. We also have a disjointed, beastly bureaucracy and criminally tortuous billing systems designed to beat the breath out of hope.
So this won’t be easy to bring home, or to scale up to our vast need, and no one in the L.A. delegation was under the illusion that it will be. There were gasps when we learned that Trieste has enough staff to make two or three daily home visits to check on clients in the throes of crisis. That’s a huge investment, and going forward in L.A., covering the cost will be yet another monumental challenge.
But our comparative debacle of a system makes it all the more critical that we blow it up, and it’s unforgivable that it’s taken this long to try something new.
I’ve seen programs in Los Angeles that echo the Trieste model on a small scale, some of them quite effective. But even those get battered by bureaucratic interference and debilitating resource shortages.
The Hollywood pilot has to be built to eviscerate those problems and free a well-trained army of people to serve a far larger population, and whatever clicks in Hollywood has to be rolled out to the rest of the county as quickly as possible.
Mental illness hits about a quarter or more of our homeless population, but this is not about ending homelessness. It’s about ending our inhumanity, and finally helping those we’ve left to languish and even die at our feet.
What comes next is a year of planning out the specifics, siting urgent-care and community health centers, recruiting Hollywood businesses to hire participants, convincing residents this will be a community asset and not a burden, hiring clinicians and outreach teams that include those who were once in need of help, and lining up enough housing to give the pilot a chance.
“I’m out on a limb on this one,” Sherin admitted when I met with him in Hollywood one morning after I got back from Trieste, and we discussed the promise and the challenge.
Sherin said Los Angeles has focused for too long on easier cases while giving up on those with more severe and hard-to-treat symptoms. In the pilot, he envisions several teams of 10 to 12 staffers assigned to groups of 100 to 125 clients, and he doesn’t want those clients endlessly shuffled from streets to jails to hospitals without a constant, coherent effort to help them break that cycle.
“I don’t give a rap what time of night it is, you take care of them,” Sherin said.
The doctor said he hits the streets with his outreach teams once a week or so to stay in touch with the need. Anthony Ruffin, who is helping build the pilot and whose dogged outreach efforts I wrote about two years ago, wanted Sherin to check on a man with mental illness and meth addiction who has been living on the same patch of sidewalk near a coffee shop for 10 years.
When we got there the man was ranting, taunting passersby, screaming profanities and insults.
Sherin sat next to him on the sidewalk, took the full brunt of the eruptions, and waited him out. They talked quietly for a few minutes. The man said he was out of his medication, and Sherin promised to come back and bring him some.
We have way too many such cases and we can no longer have people camped outside for 10 years, and sometimes longer, as we shrug or throw our hands up in surrender, or tell rattled merchants or residents we’re sorry but we don’t have any answers.
The man was still ranting when we left, but Sherin said the pilot won’t shy away from tough cases like this one. It will take them on because it’s the humane and moral thing to do. Whatever happens, I found it encouraging that the county’s mental health director doesn’t consider himself above sitting on a gritty Hollywood sidewalk to connect with someone in desperate need.
When I checked back in with Morrison after my return to Los Angeles, she had moved on to Rome, where she was looking at more mental health innovations and trying to learn from them. She said that Trieste for her was still the gold standard, and she was ready to begin the hard work of bringing Los Angeles into line.
As the headline said on a Morrison blog post two years ago:
“Once You’ve Seen Trieste, You Can’t Pretend It Doesn’t Exist.”
We work with stakeholders to improve care for persons suffering from chronic serious mental illness through cost-effective network enhancements:
(a) a person-centered culture (instead of program-centered),
(b) financial & other incentives, based on performance & outcomes, for providers to better serve this population;
(c) more Lighthouse- like homes, i.e. community living properties with 24-hours per day and 7-days per week supportive staff inside these properties,
(d) humane, well-regulated facilities for secure residential treatment, involuntary as medically appropriate, for those who need more intensive care for a longer period of time to gain insight and continue their recovery in a less restrictive setting; and,
(e) other possible solutions.
We are encouraged to see a focus back on research and understanding individuals that lack insight into their illness.
HIGHLIGHTS ANOSOGNOSIA, CRIMINALIZATION OF SEVERE MENTAL ILLNESS IN CALL TO ACTION
ARLINGTON, VIRGINIA – On Thursday, Dr. E. Fuller Torrey gave the keynote speech at the American Psychiatric Association’s IPS Mental Health Services Conference in New York.
Widely considered a celebration of Dr. Torrey’s monumental career, the speech focused on one of the most important questions facing modern mental health care: what did American psychiatry get so wrong that caused our system to fall apart?
Dr. Torrey’s answer identified five key causes:
A misunderstanding of the causes of psychosis;
Ignorance regarding the role lack of insight (anosognosia) plays in providing effective care;
A failure to prioritize care for the tens of thousands of individuals being discharged from state hospitals;
An overreliance on a top-down federal approach versus directly coordinating care with state and local communities;
A failure by NIMH to effectively oversee the system or to prioritize serious mental illness care.
Dr. Torrey, speaking to hundreds of community psychiatrists, detailed how emptying state psychiatric hospitals without a plan for how people would be treated in the community led to a series of tragic outcomes, including homelessness, criminalization and a system collapsing under the weight of ineffective, unresponsive programs.
He concluded the speech with two calls to action.
First, he asked the IPS to prioritize the problems he listed, noting that “America needs IPS to solve these matters.”
The Treatment Advocacy Center is a national nonprofit organization dedicated to eliminating barriers to the timely and effective treatment of severe mental illness. The organization promotes laws, policies and practices for the delivery of psychiatric care and supports the development of innovative treatments for, and research into the causes of severe and persistent psychiatric illnesses, such as schizophrenia and bipolar disorder.
There are tent cities under freeway structures and along various streets. People that self-organized in the popup tent compounds are most likely not individuals suffering from untreated serious mental illness. I believe that persons in the tent communities are far more likely to be homeless due to affordability, addiction, or past felony convictions (which make it more difficult to find housing.)
I am in the downtown area of San Francisco this week, and one cannot ignore the devastating effect of not treating persons with serious mental illness. The lack of dignity is palpable. The stench of urine is overpowering even despite the businesses paying cleaners every morning to wash down their storefronts. People should not live in cardboard boxes and relieve themselves on the sidewalk. Some of the folks I observe are too ill to even beg for food. They are fighting demons I cannot see, arguing with invisible enemies within. As Chick Arnold once said, “They are dying with their rights on.” Meaning that in the interests of protecting certain civil rights (ability to choose one’s lifestyle i.e.: ‘he’s his own Guardian.’)” But at what cost?
I was on a docent tour at the Legion of Honors yesterday, and a gentleman from Germany was discussing the weak social system he observed in the Bay area. He said not helping vulnerable people is intolerable to Europeans, but that they pay a high cost to achieve that; about 60% of their salaries. We don’t want to become a socialist state, we need to support cost effective solutions that are working:
Lighthouse like supervised community living homes and
Yet that often seems what we continue to do when dealing with the chronically homeless and mentally ill.
Which is why I’m always on the lookout for out-of-box ideas. I’d like to cite two examples of such thinking in helping individuals step away from the streets-jail-emergency room treadmill.
The staff at St. Joseph Healthbecame concerned when it kept seeing the same patients cycle through its two hospitals in northern California. It was obvious why. There was no safe place for these chronically homeless and often seriously mentally ill patients to go after they were discharged.
St. Joseph’s Hospital began paying for five beds at a local clean and sober house. That soon grew to fifteen beds. The hospital pays a yearly amount for the building and insurance, screens potential candidates and provides clinical case management for residents during their stay. A community homeless advocate provides 24-hour non clinical staff. Funding for two nurses, a social worker and a health coach — comes out of the hospital’s operations budget.
The goal is to stabilize patients enough to move them out of the program in 21 days, but longer stays occur if needed. St. Joseph’s estimates it saves as much as $1,500 per patient per day by keeping them out of the hospital. And its success rate with patients is good. About half of the homeless who go into respite move into transitional housing with assistance from the team.
According to Healthcare Dive, more and more hospitals are stepping up to deal with homelessness and whittle down accompanying high medical utilization costs. Their efforts range from providing post-discharge respite care to residential case management to donating money to build new housing units for homeless and low-income individuals.
Most successful programs rely on strong community partnerships.
I serve on the board of the Corporation for Supportive Housing, a national organization focused on the homeless, and it estimates that healthcare systems have invested between $75 million and $100 million in housing projects that CSH supports, according to my friend and CSH spokesman Robert Friant, who was quoted in the Healthcare Dive article.
Twenty-five cells were converted to rooms. Instead of bars, each has a door and its own bed, sink, toilet and television. Clients eat in a communal dining area. Staff from nonprofit organizations and civilians employed by the sheriff’s department provide warm handoff services — outside of the criminal justice system. The cost to reconstruct the cells was $10,000. Items such as televisions and kitchen appliances were donated. The goal is to keep individuals from cycling back into the criminal justice system.
“Chances are Apple’s plan will save Albany County taxpayers hundreds of thousands of dollars a year, make the city safer and save lives,” Roberts writes.
Of course, housing the homeless in jails is unorthodox and makes some advocates uneasy because it can cause further stigmatization. But living on the streets is dangerous and deadly. Studies show the average life expectancy for chronically homeless individuals is in their early 50s.
One reason why the St. Joseph Hospital model and Sheriff Apple’s method appeal to me is they were solutions that originated from the local community up, rather than the federal government down.
I began this blog with the cliche about insanity. I will end it with another quote that I repeat over and over and over again on this blog and in my speeches.
‘Never doubt that a small group of thoughtful, committed citizens can change the world: it’s the only thing that every has.’ Margaret Mead.”
As we wrote about in our August 2019 blog, “What are the consequences of an inadequate number of long term public psychiatric inpatient beds?“; we seem to have no shortage of short term stay private pay psychiatric hospitals, but we still lack the long-term public beds. Until we repeal the IMD exclusion, there will be no motivation to ensure that patients that need longer stays in the hospital will be permitted to remain in the hospital. Utilization managers apply pressure to discharge patients to outpatient treatment. There is also an undercurrent of belief that anytime someone needs hospitalization, it is a failure on the part of the outpatient treatment team. Unfair access to hospitalization, when in a behavioral health crisis to appropriate admissions, seems to be a parity issue.
Let’s look at a medical model of a physical lifelong disease process. A person who is obese and has type two diabetes may require readmission to a hospital for re-regulation of their treatment for their disease.
Uncontrollable insulin levels may be due to one of the following reasons:
a) the patient not taking medications as prescribed,
b) eating sugar despite warnings, or c) generalized signs of changes in their metabolic system.
Upon patient stabilization in the hospital, the outpatient treating physician is not penalized for the initial admission.
Why is mental health inpatient treatment any different than medical inpatient treatment for physical diseases?
Isn’t the head part of the body?
This is a parity violation!
Phoenix to get new psychiatric hospital, but some say it won’t fill the need
The Phoenix area is in desperate need of more in-patient hospital beds for individuals with psychiatric needs, mental health workers say.
But some fear the new $19.5 million, 96-bed private Phoenix Medical Behavioral Hospital opening in central Phoenix next spring won’t be the solution.
Caliber, a development company, bought the building at 14th Street and McDowell Road for $10 million and is putting $9.5 million into renovations. NeuroPsychiatric Hospitals will run the facility, company spokesman Jim Hummer said.
Hummer said the hospital will only treat adults and expects a majority of its patients will come from senior living facilities. The company owns similar facilities in Indiana.
Some in the mental health community question whether the new hospital will effectively serve the community given the long-term care patients with chronic mental illnesses require.
Psychiatric beds in the Valley
There are currently 433 licensed, state-run in-patient psychiatric beds in metro Phoenix, according to the Maricopa Integrated Health System. An additional 144 beds are slated to be available by April 2020 at Maryvale Hospital in Glendale.
Even with the additions, Phoenix is still in need of in-patient psychiatric beds, health care officials said.
“Everything that I’ve read indicates that Phoenix has a lower than typical number of beds for the population that we have,” said Dr. Gene Cavallo, vice president of the Maricopa Integrated Health System. “For a metropolitan area of this size, we still have a need for more.”
Arizona ranked fourth worst in the nation, with 4.4 beds available per 100,000 people.
Caliber offers private beds
The beds opening up at the Caliber-owned hospital will be for voluntarily-admitted patients.
These patients may have public or private health insurance. The difference, however, is there is no court mandate or petition that forces someone to enter Phoenix Medical Behavioral Hospital like the patients publicly-operated hospitals must take.
Unlike other private hospitals, Hummer said, Phoenix Medical Behavioral Hospital will have a two-armed approach in its treatment, part medical and part therapy. He said patients are usually treated with medication, but this hospital will also have a team of psychiatrists and therapists who will be there to help patients.
But even that won’t meet the Valley’s needs, one mental health advocate said.
Meeting community’s needs
Charles “Chick” Arnold has been a mental health lawyer working with Valley families of people who are mentally ill for more than 30 years. Arnold successfully sued Arizona in 1989, alleging that Maricopa County did not provide a comprehensive community mental health care system as required by the state.
There are two types of people with mental illnesses who may need a psychiatric hospital, Arnold said. And their needs are quite different.
The first type is those who’ve suffered a momentary mental health crisis, like environmental depression or a psychotic episode, Arnold said. Such people may need admittance to a hospital for short period of time, roughly 30 days, because their illness can be addressed relatively quickly.
“The time someone needs to spend in the hospital is based on a number of factors: quick response to meds, social and family support, and a plan for when they’re ready to leave the hospital.” Dr. Gene Cavallo, vice president of the Maricopa Integrated Health System
The second type is people with mental illnesses such as clinical depression, schizophrenia or bipolar disorder. These people may need to be admitted to a psychiatric facility for a longer period of time and their illnesses are a lifelong struggle.
“The time someone needs to spend in the hospital is based on a number of factors: quick response to meds, social and family support, and a plan for when they’re ready to leave the hospital,” Cavallo said.
The new hospital will focus on those acute mental illnesses and patients will typically stay in the facility for less than a month, Hummer said.
“People that come to us are in a crisis situation, so they’re either threatening to harm somebody, harm themselves, they may have hallucinations, they may be psychotic,” Hummer said. “One we get them back to their baseline of where they have been before all of these things happened, that’s when they’re discharged from the hospital. Our average length of stay is anywhere between 15 to 21 days.”
Arnold said the real need is with that second group. Without more long-term beds for them, they will continue to cycle in and out of the Phoenix area’s jails and emergency rooms, Arnold said.
“Do we need more beds?” Arnold asked, “Well, we don’t need these kind of beds.”
“What they’re offering is short-term hospital space for people who have substance abuse or behavioral health issues,” Arnold said. “There are a lot of private hospital options that, frankly, don’t generally serve this particular population very well in the absence of any type of follow up.”
Laurie Goldstein, vice president of the Association for the Chronically Mentally Ill in Arizona, has a son with schizoaffective disorder who went through many short-term facilities on his way to a healthy life.
About 40% of people with psychotic disorders don’t recognize they’re ill, she said, complicating a physician’s ability to give them a drug treatment.
“Everything nowadays is very short-term,” Goldstein said. “So I think taking someone, whether it’s public or private, to a psychiatric hospital where they want to tweak their meds for three days or five days, and then say that’ll stabilize them outside — that just doesn’t happen.”
Hummer said NueroPsychiatric Hospitals was contacted by health care people in metro Phoenix saying there is a need for a hospital like this one and asking them to help.
Chuck and I had an opportunity to meet with Cheryl Roberts and Francis J. Greenberger while in New York City this past fall. We discussed their pilot program to develop an alternative to incarceration pilot facility to provide a secure “locked” therapeutic environment for those with serious and or chronic mental illness or personality disorders.
Today the New York Daily News printed an Op Ed by Green burger Center Executive Director Cheryl Roberts about the need to rethink the jail closure plan. There are better ways to provide treatment and rehabilitation to people living with serious mental illnesses and substance use disorders and to end the cycle of homelessness and incarceration.
The city of Albany recently changed the name of the county jail from the Albany County Correctional Facility to the Albany County Corrections and Rehabilitative Services Center to reflect its broader mission to provide housing and services to homeless people. Most importantly, staff from nonprofit organizations and civilians employed by the Sheriff’s department will provide these services outside of the criminal justice system.
In Florida, over the past two decades, nearly 9,000 people have been referred to a program created by Miami Dade County Judge Steven Leifman to divert individuals with serious mental illnesses away from the criminal justice system and into comprehensive community-based services. Annual recidivism rates among participants went from 75% to 20% and the jail population dropped by 40%, allowing the county to close one of its jails and save $12 million a year.
As New York City finalizes its plan to close Rikers, more diversion and less jails space is needed.
Not long ago, Albany County Sheriff Craig Apple changed the name of the county jail from the Albany County Correctional Facility to the Albany County Corrections and Rehabilitative Services Center to reflect its broader mission to provide housing and services to homeless people. Most importantly, staff from nonprofit organizations and civilians employed by the sheriff’s department will now provide these services — outside of the criminal justice system.
The cost to reconstruct the cells was $10,000. Things like televisions and kitchen appliances were donated.
Among the first clients to be admitted will be people released from jail who find themselves homeless. The goal is of course to keep them from cycling back into the criminal justice system.
Chances are Apple’s plan will save Albany County taxpayers hundreds of thousands of dollars a year, make the city safer and save lives. That’s what happened in Miami-Dade, Fla., when a judge started providing services and treatment to people who constantly cycled in and out of jails, hospitals or homelessness.
Over the past two decades, nearly 9,000 people have been referred to a program created by Judge Steven Leifman to divert individuals with serious mental illnesses away from the criminal justice system and into comprehensive community-based services. Annual recidivism rates among participants went from 75% to 20%. The jail population dropped by 45%, allowing the county to close one of its jails and save $12 million a year.
According to Miami police, officer shootings of people with serious mental illness went from two a month to six in the last eight years, over a time period during which the number of arrests in Dade County went from 118,000 to 54,000.
To build on this success, Dade County just broke ground on its own “one-stop shop” facility to allow judges the ability to provide people with serious mental illnesses accused of misdemeanors or low-level felony level crimes with an off-ramp from the criminal justice system with the goal of never seeing them again, at least not behind bars.
This facility will offer treatment for mental health, substance abuse, and primary medical care needs, including eye and dental care; a court room; a crisis stabilization center where police can bring someone instead of arresting them; short- and longer-term residential space; a day activity program to teach self-sufficiency skills; and a supportive culinary employment program.
As New York City grapples with how to replace Rikers in the name of progressive reform, it’s still not too late to consider building “one-stop shops” like Albany and Dade County.
New York City has already demonstrated a remarkable and unprecedented ability to reduce the jail population. Now, it must address the core populations that will make further reductions more difficult.
The host communities of the proposed borough-based jails and advocates want smaller facilities. The shortest route to delivering them is to do what Albany and Dade have done — to make room elsewhere to better serve people with specific chronic needs such as housing, mental health and substance-abuse treatment — none of which are or should be the forte of jails or the city’s Correction Department.
As it moves jail beds out of Rikers and into the boroughs, the city has a rare opportunity to build more treatment and rehabilitative beds, and to finally right the wrong of the decades-long mass incarceration of people with mental illness. Incarcerating this population has not been fair, effective or fiscally responsible to them or their families, nor to corrections officers or communities.
Now is the time to ensure that mental health treatment is provided outside of the criminal justice system and in the public health system, where it belonged in the first place.
Roberts is executive director of the Greenburger Center for Social and Criminal Justice.
While attending a global mental health conference last fall, ACMI Vice President and Founding Director, Laurie Goldstein asked a psychiatrist from Trieste, Italy, “About how many persons with serious mental illness are in your jails?” The psychiatrist looked startled and replied, “We do not send our persons with mental illness to jail.” He went on to explain that if a person is experiencing a psychotic episode and the police are called, the police call the person’s psychiatrist, who treats the person until the person is stabilized. The Italian psychiatrist went on to explain that it is his “responsibility to prevent and also treat psychotic episodes, even if the person is jailed. Community providers remain engaged and accountable for their patients’ progress.
The Trieste Model, labeled by the World Health Organization (WHO) as one f the most progressive public psychiatry delivery systems, is now a collaborating center for mental health research with the WHO. The Trieste model manages to put the person at the center of the delivery system by 24-7 comprehensive treatment through a network of mental health centers that are “capable of dealing with the most severe conditions and of supporting clients in their daily life, with a view towards recovery and social inclusion.” https://zeroproject.org/practice/mental-health-department-whocc-italytrieste/ These 24-7 clinics not only replaced all psychiatric hospitals in Trieste, today fewer people go to jail because of the lack of continuity of care and cooperation between the law enforcement and mental health systems. The “sequential intercept model” enjoys deserved praise; Trieste shows that the first key intercept if effective clinical care.
Whether the Trieste Model is transferrable or sustainable elsewhere is debatable. But its existence and success generate food for thought about the relationship between the mental health and criminal justice systems in the United States and Arizona, specifically. Our communities experience high profile incidents in which an individual living with a serious mental illness commits a horrific crime, often resulting in death or serious injury. Often the individual is receiving services in the public behavioral health system, but in a psychotic state due to inadequate treatment either because of non-adherence or inadequate follow-up.
Reactions to these events are intense and sometimes polarized. Some believe the behavioral health industry “gets a pass” for poor management of potentially violent, seriously mentally ill “patients” who become “criminals.” Some contend that mental illness should never excuse criminal conduct. In terms of city, county and state fiscal accountability, there is no question that law enforcement and the corrections systems shoulder an increasing financial burden of caring for persons who commit a crime while they are enrolled in treatment in the behavioral health system.
Consider that the Maricopa County jail, one of the largest in the country, “books” (admits) approximately 100,000 individuals each year. Of these, approximately 8,200 (8.2%) of the total daily population are identified with SMI; another 16,000 (16%) have a significant mental health issue. Once incarcerated at the jail, the cost of care for these detainees shifts to Correctional Health Services (CHS) and Maricopa County https://www.maricopa.gov/5161/About-Correctional-Health-Services-CHS The Arizona Department of Corrections (ADC) has a similar patient population. In 2015, approximately 26.6% of all ADC inmates receive mental health services; of these, 4.7% are classified as SMI. Nicole Taylor and Karen Hellman, MENTAL “HEALTH DISORDERS AND THE CRIMINAL JUSTICE SYSTEM,” Arizona Dept. of Corrections (2015)
A defining difference in the “system” in Trieste, Italy, and Arizona (and the entire United States) is the presence of multiple payors and the involvement of private insurers in coverage decisions, rate setting, utilization management, and financing of health care services. Nonetheless, we can ask how behavioral health providers can be more responsible and accountable for the ongoing treatment of individuals in their care who become the justice system-involved and end up in jail or prison? Maybe dollars for care and services could “follow” the individual from clinic to jail or prison and back again? Maybe the county and state would bill the providers for treatment of incarcerated members? Maybe community providers would treat the person post-incarceration on a contract basis?
There are no easy answers but many fascinating questions for innovation in the delivery of services, especially person-centered services. The bureaucracies, payor systems, and pages of statutes and regulations are formidable obstacles. But there is an opportunity to examine ways to more equitably and effectively deploy resources of law enforcement, corrections, and the behavioral health system to accomplish two goals:
Reduce the likelihood that individuals living with SMI will become “justice system involved” ––an obfuscation of saying “committed a crime” or “got arrested”
More equitably distribute fiscal and clinical responsibility for treating individuals in jail or prison.
Laurie Goldstein’s question to the Italian psychiatrist was simple but provocative. “How many people with SMI are in your jail?” Maybe Arizona can find some answers in Trieste, Italy, which reduced these numbers through a truly person-centered community delivery system. Trieste, Italy does have a much smaller population that Maricopa County, so questions of scale and the intimacy of community is called into question. It may not be an fair comparison, but best practices may be applied in smaller clinical settings. In 2018, Trieste had a population of about 205,000 and it is the capital of the autonomous region Friuli-Venezia Giulia. The metropolitan population of Trieste is 410,000, with the city comprising about 240,000 inhabitants. Maricopa County is located in the south-central part of the U.S. state of Arizona. The U.S. Census Bureau estimated its population was 4,410,824 as of 2018, making it the state’s most populous county, and the fourth-most populous in the United States, containing more than half the population of Arizona. Wikipedia
Dr. Michael Franczak, noted psychologist and population health scientist, sagely noted, “The continuum of care is really a series of swinging bridges over a very large canyon.” Dr. Franczak’s language is poignant for families who long assist loved ones to navigate the particularly deep and wide “canyon” of chronic serious mental illness. These families know that “provider culture matters.” But too often, when we decide to redesign or add a bridge to the COC, we overlook these families as a valuable source of information about provider cultures.
Nearly all behavioral health providers claim to be “person-centered”. Most are not. Most are “program-centered” — the patient must “fit” the program or move on. If you can’t make it on a given bridge, you fall off or have to make it on your own – back or ahead. Consequently, individuals living with chronic, serious mental illness often get ejected because the severity of their illness interferes with their ability to participation in “encounters. Or their behaviors — which arise from their mental illness — are deemed “just not a good fit” for the program. The individuals are expected but often unable to find footing (stay stable) and hang on to the swinging bridge. They often end up homeless, re-hospitalized, arrested, or fall off the COC tumbling into the canyon. And this cycle often repeats many times.
Patient-centered care describes an approach to providing health care in a manner that emphasizes and respects the needs, values, and choices of patients (Australian Commission on Safety and Quality in Health Care, 2010). It has been delineated into ﬁve key dimensions: (a) viewing health in a holistic manner, (b) seeing the patient as a person with needs that extend beyond their illness, (c) sharing power and responsibility with patients and helping them collaborate in their own care, (d) building therapeutic alliance with patients and maximizing the therapeutic value of the patient-provider relationship, and (e) understanding how the personal qualities of the provider inﬂuences quality of care (Mead & Bower, 2000). Recovery-oriented care shares many of these same features (U.S. Department of Health and Human Services, 2009). Published research on patient-centered care and the related topics of patient engagement and recovery-oriented care have begun to demonstrate that involving patients in care processes, including the planning and the delivery of health services, will improve outcomes (Resnick & Rosenheck, 2008; Sidani, 2008; Warner, 2010). James D. Livingston, Alicia Nijdam-Jones & Johann Brink (2012) A tale of two cultures: examining patient-centered care in a forensic mental health hospital, Journal of Forensic Psychiatry & Psychology, 23:3, 345-360, DOI: 10.1080/14789949.2012.668214
The behavioral health industry incentivizes “program-centered” delivery by financially rewarding organizations that serve a large number of members with services appropriate for most members and for which the program is guaranteed reimbursement. Providers sometimes achieve good performance metrics by rejecting or ejecting “high-utilizers” who need more services than existing performance measures identify and incorporate, and which are expensive and difficult to provide in “standard” programs. Whether a given program “cherry-picks” members for financial gain or ease of practice or lacks adequately trained and experienced staff, the result is the same: individuals living with chronic SMI often get excluded and tumble into the canyon below. Their recovery journey is interrupted, sometimes perilously ended.
Some providers are truly “person-centered”. These providers develop ways to use program protocols as guidelines, but they develop meaningful Individual Service Plans (ISPs) to support each patient’s progress in a strength-based, person-centered recovery journey. The program adjusts to fit the person, not vice versa. These providers create ways to steady the swinging bridges. The individual is able to remain on the recovery journey, perhaps pausing longer on one bridge than other individuals in order to stabilize. Truly person-centered culture thus permits individuals to remain on the COC, move from bridge to bridge, avoid the perils in the canyon below, and gain strength to meet the challenges ahead.
When even a few families gather, we often hear and see remarkable information and wisdom gleaned through decades of lived-experience helping loved ones navigate the COC — swinging bridges and all. Family members “know” the frustrating (and dangerous) reality of an individual with chronic serious mental illness being ejected from programs due to the chronicity and severity of the very illness that brought the individual to the program. Family members keep journals, photos, arrest records, bills from hospitals emergency rooms, and more. When we stitch together family stories about different providers’ culture of care over time in a given locale, we gain deeper understanding of how specific provider’s culture facilitates or impedes a recovery journey, especially for those living with chronic SMI. The voice of persons with serious mental illness also have a very significant perspective that needs to be heard. Without shared responsibility for the treatment plan, most people struggle to achieve recovery.
Unfortunately, families often are excluded from meaningful interaction in many facets of the recovery model as often implemented by some providers. But families are least utilized in what may be the most important aspect of developing successful new programs to fil the gaps on the COC: evaluation of providers who run truly person-centered care. This is unfortunate and undermines fully informed public policy.
Family members often know which specific providers, despite being rewarded for “good numbers” under traditional performance metrics, may have done so at the expense of good care for hose living with chronic SMI. Family members can identify providers who are skilled enough and oriented to implement truly person-centered services in a strength-based recovery program. Family members know which providers manage to connect the swinging bridges on the COC, even for individuals who are non-adherent to treatment or have Anosognosia or must manage co-occurring disorders … or all of these.
As we try to find new, clinically appropriate options to fill gaps between the swinging bridges on the COC for those living with chronic SMI, qualitative factors should be more prominent in the selection of providers for programs and evaluation of providers across all programs. Qualitative factors may appear to be more difficult to evaluate, may appear somewhat subjective, and may be harder to “defend” than purely quantitative factors. The number of crisis interventions or hospitalizations is easy to count. Evaluating patient-centered culture is not so simple. But information from families is rich, powerful, and provides human insight not available from quantitative performance metrics. Contemporary mixed methods provider evaluation is possible and beneficial. And qualitative data gleaned from interviews with families about their experiences with specific providers will add “depth of understanding to complement breadth of understanding afforded by quantitative methods.” Palinkas LA. Qualitative and mixed methods in mental health services and implementation research. J Clin Child Adolesc Psychol. 2014;43(6):851–861.doi:10.1080/15374416.2014.910791. PMID: 25350675.
Family members of those on a recovery journey with chronic serious mental illness are an important source of information to identify providers who offer truly patient-centered care for those living with chronic serious mental illness. Providers with demonstrated person-centered culture should be embraced as essential to steadying those swinging bridges in the COC for those living with chronic SMI and trying to traverse the very large canyon below.
There is often debate about whether involuntary treatment works if the individual is not ready to engage in their own recovery.Individual choice of treatment is always preferable, but not always safe for the patient or others.”
SUMMARY: Patients with psychiatric disorders refuse medications for a variety of reasons, including experience with, or fear of, side effects. In other cases, the refusal is based on lack of awareness of illness (anosognosia) or on delusional beliefs. Many such patients must ultimately be medicated involuntarily. Studies suggest that the long-term effects of involuntary medication on individuals with schizophrenia and manic-depressive illness (bipolar disorder) are more beneficial than is commonly thought. In most studies, the majority of patients retrospectively agreed that the use of involuntary medication (i.e. involuntary (forced) treatment) had been in their best interest. Anecdotal claims by opponents of forced treatment that involuntary treatment has widespread, devastating, and lasting effects are not supported by these studies.
“We already knew AOT an effective treatment option that saves lives. The report shows it saves money, too, even in geographically different settings where it is being put to work in dramatically different ways.” Doris A. Fuller, executive director of the Treatment Advocacy Center.
Last year in Maricopa County, Arizona, there were 3,600 Court Ordered Evaluations (COE) requested. Of those evaluations, 2,600 Mercy Care adult members were assigned Assisted Outpatient Treatment (AOT). In order for a person to meet criteria for court ordered psychiatric treatment under Title 36, they must be either unwilling or unable to accept treatment voluntarily. “Unable” would apply to those who lack sufficient understanding of their psychiatric condition, or of the advantages vs. disadvantages of various treatment options, to make an informed decision, even after efforts were made to inform them fully. Involuntary treatment does not equate with “medication only”, as medication is not the sum total of psychiatric treatment; while it has a major role for treatment of some major mental illnesses, for other conditions it is less central to the treatment plan. For example, a person who is acutely distraught due to a life event (e.g. death of a spouse) might, in rare cases, need involuntary hospitalization if he/she became suicidal and was unwilling to seek help, but medication might not be required in that situation. Psychotherapy and counseling may be a more sensible option.
In Arizona, AOT is the Title 36 Court Ordered Treatment (COT) which allows a certain number of involuntary inpatient days each year and appoints an outpatient provider responsible for supervising and administering the outpatient treatment with the option of forced administration of medication on an outpatient basis. The mental health court has the authority to bring the person back into an inpatient setting at any time (the outpatient team can request that the judge order the person back to the hospital) as long as there are inpatient days remaining on the order. These 2,600 Mercy Care members are in our SMI, ACC, and ALTCS plans. In addition to Mercy Care, there are another 6 ACC plans and 1 other ALTCS plan in Maricopa County which also have members on COT. AHCCCS recently implemented identification of COT members statewide so AHCCCS would be able report how many adults statewide are on COT.
For Assertive Community Treatment (ACT) team providers, findings include:
Psychiatric hospitalizations per 1000 members have decreased 21% (compared to an 8% reduction of psychiatric hospitalization in prior year)
Medical hospitalizations per 1000 members have decreased 12%;
Emergency department visits per 1000 members have decreased by 11% (compared to a 6% reduction in prior year);
Homelessness per 1000 members has decreased by 19%
For Forensic ACT team providers, findings include:
A forensic ACT team achieved a 57% reduction in the number of jail bookings;
A 54% reduction in psychiatric hospital admission (compared to a 31% reduction in prior year);
An 27% reduction in Emergency department visits (compared to an 18% reduction in prior year); and
Court-ordered treatment (COT -a type of involuntary treatment-) in the community reduces taxpayer costs associated with untreated serious mental illness for individuals stuck in the “revolving door” of repeated hospitalization, incarceration and other consequences of non-treatment, according to a report issued Wednesday.
The study, conducted by Health Management Associates, found that the costs of serving clients in assisted outpatient treatment (“AOT”) were more than offset by the reduced need for inpatient hospitalization and other high-cost services. A net public savings resulted.
Thomas Insel, director of the National Institute of Mental Health, has estimated that the total cost of non-treatment to the government—including things like Medicare, Medicaid, disability support and lost productivity—is as much as $317 billion per year. Other studies have suggested that it costs federal, state and local governments $40,000 to $60,000/year to care for a single homeless person with a serious mental illness. There are roughly 250,000 mentally ill homeless people in the U.S. today. New Study: “Assisted Outpatient Treatment Saves More Taxpayer Money Than It Costs” Arlington, VA (PRWEB)February 18, 2015
Nine patients, seven with schizophrenia and two with bipolar disorder, refused medication when admitted to a psychiatric unit. All nine were given a single injection of long-acting fluphenazine decanoate. At the end of two weeks, their symptoms were markedly improved (BPRS improved from 10.4 to 4.1), and all were accepting medication voluntarily. Keisling R. “Characteristics and outcome of patients who refuse medication.” Hospital and Community Psychiatry 34:847–848, 1983.
Twelve patients refused medication when admitted to a psychiatric unit. Three-quarters of them were diagnosed with schizophrenia or bipolar disorder. Compared to a control group that accepted medication, the refusers had less insight into their illness, were more psychotic, had higher mood elevation, and were more grandiose. After two weeks of medication, six of the patients (50 percent) no longer wished to refuse medication. “They were more likely to view medications as important for their illness and were less likely to believe in alternative treatments.” The other six patients “still preferred to refuse treatment despite considerable improvement in their clinical condition.” Marder SR et al. “A study of medication refusal by involuntary psychiatric patients.” Hospital and Community Psychiatry 35:724–726, 1984.
Twenty-four patients who had been involuntarily medicated with antipsychotic medication were interviewed at the time of discharge from the hospital. Sixteen (67 percent) were diagnosed with schizophrenia or bipolar disorder, and 5 more (21 percent) with atypical psychosis. Thirty-three percent of the patients said they had refused medication because they believed they had no need for it, 29 percent said they had refused medication because of “severe confusion or psychotic ideation,” and 17 percent “stated that they did not know why they [had] refused medication.” At discharge, 17 patients (71 percent) agreed that the decision to involuntarily medicate them had been correct and agreed with the statement: “If I become ill again and require medication, I believe it should be given to me even if I don’t want it at the time.” The 7 patients (29 percent) who disagreed scored high on measures of grandiosity, hostility, and suspiciousness; 6 of them had a diagnosis of bipolar disorder. The authors concluded that “it is impossible to avoid the conclusion that the treatment refusal of every patient in our sample was influenced by psychosis.” Schwartz HI et al. “Autonomy and the right to refuse treatment: patients’ attitudes after involuntary medication.” Hospital and Community Psychiatry 39:1049–1054, 1988.”
Eleven patients who had been forcibly medicated during their psychiatric hospitalization were retrospectively interviewed. Seven strongly agreed and two somewhat agreed (thus 82 percent total) that their involuntary treatment had been useful. Seide M et al. “The reluctant psychiatric patient: ethics and efficacy around the issue of forced medication” (Session 2219). American Public Health Association 117th Annual Meeting, Chicago, October 24, 1989.
Seventy-nine patients who had been placed under guardianship, 75 (95 percent) of whom had been involuntarily medicated, were asked to retrospectively fill out a questionnaire. Eighty-seven percent of the patients had been diagnosed with schizophrenia or bipolar disorder. The results were as follows:
Do you have a mental illness?
definitely/probably not – 47%
don’t know – 9%
definitely/probably do – 44%
How helpful was your guardianship?
very/fairly helpful – 45%
neutral – 21%
very/fairly unhelpful – 34%
There was a high correlation between patients who believed they had a mental illness and those who found the guardianship helpful (p < .01). The authors concluded that “although a majority of the patients were against enforced treatment in principle, often because they thought it conflicted with their civil rights, most found the actual experience, including medication, to be helpful.”
Adams NHS and Hafner RJ. “Attitudes of psychiatric patients and their relatives to involuntary treatment.” Australian and New Zealand Journal of Psychiatry 25:231–237, 1991.
Retrospectively, 18 patients (60 percent) said that having forced medication was a good idea, 9 (30 percent) disagreed, and 3 (10 percent) were unsure. Most of those who disagreed had either paranoid schizophrenia or bipolar disorder with grandiosity. The authors concluded that “forced medication frequently restores the capacity to make competent decisions and often results in a more rapid return of freedom to be discharged from involuntary hospitalization.” Greenberg WM et al. “Patients’ attitudes toward having been forcibly medicated.” Bulletin of the American Academy of Psychiatry and the Law 24:513–524, 1996.
Tom Szasz was the probably the greatest defender of patient rights since Pinel (the father of modern psychiatry) who, two centuries ago, started the profession off on the right foot by releasing the mentally ill from their chains.
Tom’s landmark book “The Myth of Mental Illness”, written one half century ago, contained a crusading Bill of Rights for psychiatric patients. He argued passionately for the dignity and freedom of choice of mentally ill inmates who were then often warehoused for life in hospitals that were aptly compared to snake pits. Allen J Frances M.D posed to Tom a hypothetical in which his son was having a transient psychotic episode, was hearing voices commanding that he kill himself, felt compelled to act on this, and refused treatment. As a father, would you stand by your libertarian principles or protect your son from himself, even if this required coercion. Tom smiled ruefully and said: “I am a father first and protector of human rights second.
My story begins as a young man from Ohio. I was born in a small football city. So much so, that all of the little boys are born with small orange and black footballs in their cribs! I was very active in sports and performance in school. An aspiring actor as it were. The town I was raised in was also known for being a city of parties in addition to having a talented football team.
My teenage years were filled with parties, alcohol, marijuana, girls, and excitement. But my relationship with alcohol and marijuana were anything but standard. I found myself using pot every day habitually and drinking on the weekends in excess routinely. This carried into my early twenties. Being a workaholic in addition to an addict eventually caught up to me. I had a mental breakdown in the workplace, which lead to me checking myself into a psychiatric hospital. I was diagnosed as having bi-polar disorder and was later diagnosed as having schizoaffective disorder.
Fast forward to the age of twenty-five. At this point, I was prescribed medication to take care of my symptoms. However, I chose to forgo my medication in favor of self-medicating with marijuana. The marijuana only perseverated my symptoms as I began to experience auditory hallucinations and delusions. One day, while I was in a moment of delirium, a relative and I got into an altercation that resulted in me hurting the other person. I was arrested and eventually sentenced to stay at the Arizona State Hospital for a very extended period of time.
It was at this point that I had a choice to make. I could retreat and isolate back to my room where I could wait out my time – only to be released and continue my tragic cycle. Or I could make the best out of a tough situation. I chose the latter! First, I chose to take college courses while in the hospital. I was one of only three people who had ever finished their Associates degree in the long history of the State Hospital. Then I opted to join the Arizona State Hospital Human rights committee along with being a representative of the Community Reintegration Unit to the hospital administration during my stay. I was able to assist in reaching agreements for new privileges for us, the patients on my unit. When I was awarded access to passes to the community, I found a job at a local hobby shop where I worked during the day and then returned to the hospital in the evening. And I also received my Peer Support Specialist Certification and CPR certification from Hope Lives – Vive la Esperanza. Additionally, I became involved in Alcoholic Anonymous and found a sponsor who walked me though the principles of the program. My goal became to leave a legacy for the other patients to follow and model hope and recovery for them.
When I was released from the hospital I was destitute. I relied on the kindness and guidance of my relatives, friends, sponsor, and clinical team. Eventually, my journey lead me to MARC Community Resources where I got involved in the Work Adjustment Training Program. I started in the classroom, teaching vocational skills to the other members. Eventually, the coordinator was impressed enough with my skills to hire me on as staff for MARC! This was a windfall for me. I continued to teach in addition to supervising the participants of the program at the St. Mary’s Food Bank in Phoenix. I found my skills rapidly growing – both as a teacher and advocate as I became a member of the AHCCCS Behavioral Health Planning Council. Later, I was promoted at MARC to become the Peer Support Training Coordinator and Trainer. I am currently the trainer along with my co-facilitator Bruce Purcell. I still teach vocational skills and I also have the privilege of bringing the Work Adjustment Training Program to the patients of the Arizona State Hospital as a representative of MARC… life really has come full circle!
In short, my experience in the hospital was a blessing in disguise for me. I learned more about myself and my illness while in there than I ever did in the community. And I used the resources available to me to help others and live comfortably. Truly a life changing experience.
I would say that at the time I would not have voluntarily entered into treatment, even while on COT, I still did not believe I needed to take medication or stay in treatment facilities that were open. I would just run away due to my impulsiveness. I experienced homelessness, arrest for sleeping in an apartment complex recreation area, and was generally scared all of the time. I felt people were trying to control my mind and had delusions about people and the environment. Eventually I ended up in a situation that could have gotten me killed, I broke into a apartment to stop the voices that were tormenting me through the walls.
Being in ASH helped me because I was away from the chaos for a long enough time, so I was able to think clearly. It was good to live in an environment where I could spend money at the bank, go to the café or store, do artwork in the studio, work part time and have a girlfriend. It was then I was able to realize what life could be like if I just took my medication and stayed off illegal drugs. All of the staff were very supportive and encouraged me to keep up the good behaviors, so I would not have to return to a locked down Level 1 hospital. I have not been in the hospital for four years, that is an all-time record for me. Since my release in 2015, I was able to repair damaged relationships with my siblings once I was stable and now have a good life. I hope everyone has the same opportunity as I had to recover in a safe place, so they can learn how to take care of themselves and learn to live again. I feel I was given a new chance at life, I am blessed.
One day several years ago a therapist escorted me to the ER for a mental health evaluation. With my refusal for treatment and promise that I was no longer suicidal, I was released. But my delusional thinking had convinced me that I was to die by suicide on that day. I wanted nothing to stand in the way. So, when I left the ER, I attempted to take my life. Three days later, I woke up handcuffed to a hospital bed. I was angry to still be alive. I was admitted to a psychiatric unit without my consent.
I was forced into treatment in a locked unit. It was not just the 72-hour hold, or until my medications were stable, but it was long enough for me to receive and begin treatment. Long enough for the doctors to really see what was going on. Long enough for me to be clear enough to participate in my own recovery. Most important is that today I can share this incident, because they protected me from myself, against my then “Better Judgement”.
I am now a small business owner.
Forced treatment saved my life!
Jan’s family story:
For the past two years our daughter was living homeless on the streets of downtown Phoenix. She was in and out of psychiatric hospitals and arrested on numerous occasions due to acts consistent with mental illness and substance abuse. Her stay in psychiatric hospitals had been at the most 7 days but most of the time 3-4 days. Once she was held over night and then released to the streets again to repeat the cycle of behaviors that had caused her to be picked up in the first place. There was almost a weekly “event”. She refused treatment of any kind and refused to live with us where she would have been safe and been taken to counseling, doctors, and therapy. Police officers often told she needed mental health treatment. We had been told over and over that there was nothing we could do until she said something or did something that was a threat to herself or others and that she needed to hit bottom. However, the bottom is often death for the individual or others.
It became very clear to us that she was going to die on the street if we did not do something other than what we had tried before. She was being assaulted on the street repeatedly and was refusing medical or dental help when offered. Police often found her face down in warehouse lots or in makeshift box houses.
It took us acquiring a lawyer and learning about PAD (persistently and acutely disabled diagnosis) in order to start the process of getting her in a position to be helped. We also were given guardianship. For the first time, she was held at the psychiatric hospital long enough to not only stabilize, but to also be given the correct medication. She was there for about a month.
For the first time in many years, she is living with us and she is emotionally stable. She has continued her meds and is cooperative and pleasant to be with. She has rejoined our family and is trying to pursue employment.
Forced treatment saved her life. It has never been our intent for her to be locked up forever or longer than necessary. Without getting the proper psychiatric care, she was getting locked up anyway in the jails where her mental health needs were not being addressed, but exacerbated Often, she was put in solitary confinement.
I hope that changes will be made so that the mentally ill will be treated with dignity and provided the help that would most benefit their recovery. Long term, secure care is often needed in order to save their lives and provide them the time to be properly diagnosed and recover.
Eric’s family story:
If it were not for involuntary court ordered treatment, I believe my son would not be alive or minimally incarcerated today. However, this is a happy story, because I was able to push through all the barriers that were stopping me from getting him the help he desperately needed and deserved.
Understandably, not everyone has someone in their life that is willing or able to do what it takes to push through the bureaucracy to get the treatment that their loved one deserves.
There are laws on the books that allow for involuntary treatment for those suffering with mental illness, in most states. However, in 13 states, including Arizona, if someone is presenting with the signs of mental illness and also suffer from addiction, the doctors have got to decide if it is the drugs that is causing the delusions or the mental illness within the first 24 hours of being held.
There is no legal way to proceed with court ordered treatment for someone who is suffering with substance abuse disorders, in Arizona.
My son is far from this man that he had become when he was not properly medicated. He is almost the complete opposite, as a matter of fact. He had been a top selling waiter in fine dining restaurants for many years and a very kind soul. He had a mental breakdown and I needed to help him and I couldn’t.
Even though he was presenting with extreme manic grandiose bi-polar symptoms and posting disturbingly violent comments on the Internet, my son was aware enough to share the keywords that the medical professionals needed to hear: “I am not a danger to myself or to others (DTS/DTO) .”
Urgent Psychiatric Care Center also knew that my son had a previous history of substance abuse. Because of this history, the social worker told me that he would be released without treatment or further observation. I was astounded and a bit hysterical, because I was so frightened for my son’s life and they would not help me help him.
What was also maddening is that when I asked the doctors and social workers to look at my son’s internet posts, they refused to do so, saying that it is considered hearsay, because they can’t prove that it was him posting. They also said that they were not allowed to look at social media posts and signed documents that restricted their viewing of their patients posts due to some HIPAA laws. It is mind boggling, in this day and age, that our first line of defense, the psychiatric units and social workers are not allowed to utilize social media to help diagnose serious mental illness issues.
In my opinion, the medical providers should be our first line of defense (red flag watchers) for protection to the community and first line of offense and protection of that person that is suffering from mental illness and/or substance abuse disorders. These people need treatment, not prison!!
It took me four handwritten 6-8 page petitions to get my son, Eric the help he needed Each time, the police had to go pick him up, which is frightening in itself and each time the medical professionals/system would release my son back on to the streets.
It was about 1.5 weeks’ time, many phone calls, emails and faxes in order to get my son admitted for treatment. It was not until I contacted my Congressman’s office, did I get my son admitted into the Urgent Psychiatric Care Center for treatment.
When you don’t have guardianship and you are a parent of an unmarried adult child, it is even harder to get help because of the overly restrictive HIPPA laws. Sure, if your loved one is sane and able, they can sign papers giving you the right to help, but even that is minimal.
I had all 3 Powers of Attorney, which included mental health Power of Attorney to help get my son the treatment he needed, involuntarily, and I could not get him treatment. I learned the hard way that the psychiatrist would not deem him “incapacitated,” so my Powers of Attorney were useless when I really needed them.
My son, Eric, did not want treatment. He did not think he needed it. He had no idea what was happening to him and he was in complete denial that he had any problem at all. The doctors chose not to help him get treatment for whatever no good reason they could or had to come up with.
It was horrible, seeing my child, even at age 30, fall away from me and all my efforts to get him back to safety and sanity was being turned away. In my opinion, if anyone thinks that it is easy to get help for those who want it, either voluntarily or involuntarily, think again.
We need a system in place that allows for involuntary treatment to occur with much more ease than it does today. We have an epidemic across America with approximately 200 people every single day dying with issues related to mental illness and substance abuse disorders.
Fortunately, and with much perseverance, after 8 months of in-patient and 3 months of out-patient treatment, my son, Eric is doing better than ever because of the Involuntary Court Ordered Treatment that I was finally able to get for my son.
I am one of the lucky ones. He is still alive, healthy and his mind is stabilized again.
There are no more delusions or voices, he quit smoking, he is looking to go back to school to finish his degree and is committed to sobriety… because of involuntary court-ordered treatment.
Eric, over time, has gained the insight to value his freedom and sobriety and understand his mental illness more than I’ve ever seen before and it has been a long time…15 years. This Involuntary Treatment program is what seems to be working better than everything else we have tried.
When I asked Eric about this article and how he felt about involuntary court ordered treatment, he said at first, he felt like he was backed into a corner. It was hard to accept that he was ill. He also believes without the ordered treatment he would not have sought treatment on his own and certainly not be doing as well as he is today.
In Eric’s words he “now has hope he can become the man he is capable of being. “
Involuntary Treatment works. With more funding for facilities and streamlining these judicial and medical processes, loosening up the HIPAA laws to common sense laws, those suffering with mental illness and substance abuse disorders will be much better off than if they we do nothing at all and so will our society. We will save lives…lots and lots of lives and many have, can and will become healthy contributors to society.
Dick’s family story:
My son has schizo-affective disorder. He sometimes neglects his medication when his illness interferes with his comprehending the need for medication. He places himself in harm’s way without his meds. So, his family, clinical team and psychiatrist have asked judges to place him on court ordered treatment (“COT”), a legal and enforceable obligation to allow monthly injections of anti-psychotic medication.
These injections can ameliorate his symptoms (voices, delusions, etc.) to varying degrees depending on the culture of his living arrangement. For many years he has lived in various group living and treatment facilities, most of which have been “program-centered”, i.e. the patient must adhere to strict program protocols or be ejected, which can result in living in the streets, “halfway houses” or even jail (these places have been part of his lived experience). Persons whose mental illness is chronic often cannot adhere to such protocols due to the severity of their illness. COT loses much of its value in a “program-centered” culture or in the streets or in jail.
He now lives in a group home operated by an agency with a “person-centered” culture (all agencies will claim to be “person-centered”, but most are not). This agency uses program protocols as “guidelines” rather than strict rules, tailors treatment to the needs of the individual and does not eject patients for non-adherence to rules. COT and other treatment elements are much more effective in a “person-centered” living arrangement operated by an agency with an explicitly “person-centered” culture, where such culture is a reality rather than a slogan.
The Association for the Chronically Mentally Ill (“ACMI”) is helping to develop “court ordered places” where chronically afflicted patients can receive long-term care, tailored to their individual and varying needs, as an alternative to the streets or jails – to fill a glaring gap in our “continuum of care”. Meanwhile, ACMI can help families identify agencies with “person-centered” cultures most helpful to their loved ones with chronic mental illness.
Dick Dunseath, Board member Association for the Chronically Mentally Ill
According to the Treatment Advocacy Center, “The United States is in the midst of a psychiatric bed shortage that worsens every year. By early 2016, the practice of closing state mental hospitals, often called “deinstitutionalization,” had eliminated more than 96% of the last-resort in-patient psychiatric beds that existed in the mid-1950s; after a brief period of expansion in the 1990s, private hospitals, too, are shrinking their psychiatric in-patient capacity. The consequences are many and far-ranging, yet most states continue to decrease the number of state hospital beds they supply per capita and, because of financial disincentives, private and other inpatient-service providers are not stepping in to replace those that are lost. Despite widespread consensus that “more beds are needed,” neither the United States nor its individual states have conducted research to establish evidence-based bed supply ranges. The Treatment Advocacy Center in 2008 published the most commonly cited bed target in the United States — 40 to 60 beds per 100,000 people — but no official effort has been made to validate or revise this number. New computer modeling holds promise for developing evidence-based targets in the future.”
In 2008, the Treatment Advocacy Center published a study that included a safe minimum number of public beds for adequate psychiatric services per 100,000 populations. Estimates were solicited “from 15 experts on psychiatric care in the US, [including] individuals who have run private and state psychiatric hospitals, county mental health programs, and experts on serious psychiatric disorders.” Participating experts were asked to estimate beds for children and forensic (criminal justice-involved) patients, as well as civil, adult patients. An estimated range of 40-60 public psychiatric beds per 100,000 people emerged, with a consensus around 50 beds per 100,000 population. Across the 34-member Organization for Economic Cooperation and Development (OECD), to which the United States belongs, the median number of psychiatric beds per 100,000 people in 2014 was 68 beds. This suggests that international policy and practice are operating slightly above the upper end of the consensus range.
How is Arizona doing?
Public Psychiatric Beds in Arizona
A minimum of 50 beds per 100,000 people is considered necessary to provide minimally adequate treatment for individuals with severe mental illness. Like every state, Arizona fails to meet this minimum standard.
Overall Arizona has a very low number of State Hospital beds per capita – the number of beds available to those in Maricopa County borders on the absurd. In Maricopa County – where 61% of Arizona’s population resides – we have 1.2 beds per 100,000 (55 beds for 4.3 million people). This is unthinkable. This creates an extreme risk for our community. Trying to treat people in the community who need inpatient, longer term care for stabilization and to get on a solid path to recovery, is exponentially more expensive and inhumane. They cycle in an out of hospital ERs, jail, and prison with episodic or no care.
According to one local provider when analyzing population health data, of the 1,000 in-patient hospitalizations last year, a small number of folks (147) were responsible for most repeated in-patient stays.
We do not have enough long-term beds. In Arizona the only current program/facility that provides for longer term care for individuals with a chronic mental illness is the Arizona State Hospital. The hospital has a limit of 55 beds allocated for Maricopa County based on a long running lawsuit (Arnold v Sarn). Maricopa county is the most populous county in AZ. The other inpatient facilities are designed for shorter term stays many of whom are Institutes for Mental Disease or IMD’d that have a length of stay limit of 15 days. While many people can become stable in a 15-day period, many require longer term care to achieve stability. For someone that is homeless or lacks other resources or supports, its challenging if not impossible to put these resources in place in that time. The result is that many people have repeat admissions to community inpatient settings where if they had the length of stay necessary for them to attain stability, their recovery would be more likely.
Other psychiatric hospitals generally have ultra-short hospital stays for patients who do get admitted to turn beds over. These short-term hospitalizations are far too short to effectively stabilize persons with the most severe psychiatric symptoms.
Consequences due to lack of public long-term psychiatric beds:
Many emergency room visits where patients may be boarded awaiting availability of an in-patient psychiatric bed
Arrests for crimes related to their untreated or undertreated mental illness
Acutely ill individuals left untreated to suffer consequences that are often dire and sometimes fatal to themselves or others
Chronic homelessness (up to 40% of chronically homeless people also are persons with mental illness)
Prevalence and Treatment Rates (nationwide)* (Treatment Advocacy Center)
8.3 million adults with schizophrenia or bipolar disorder (3.3% of the population) +
5.5 million – approximate number with severe bipolar disorder (2.2% of the population), 51% untreated+
2.8 million – approximate number with schizophrenia (1.1% of the population), 40% untreated+
3.9 million – approximate number untreated in any given year (1.6% of the total population) +
Consequences of Non-treatment*
169,000 homeless people with serious mental illness**
383,000 inmates with mental illness in jails and prisons
50% – estimated percentage of individuals with schizophrenia or bipolar disease who attempt suicide during their lifetimes
44,193 suicide deaths in 2015
10% – estimated percentage of homicides involving an offender with serious mental illness
(approximately 1,425 per year at 2014 homicide rates)
29% – estimated percentage of family homicides associated with serious mental illness
50% – estimated percentage of mass killings associated with serious mental illness
* Numbers and percentages of US adults
+National Institute of Mental Health, 2016
**2015 Annual Homeless Assessment Report
What can we do?
ACMI advocated for and won legislative victory dedicated to expanding the continuum of care in Arizona to include secure residential treatment in the community. This level of care can satisfy the required longer-term stabilization once a patient is no longer medically requiring a level 1 in-patient psychiatric stay. Secure residential treatment facilities are a new addition to the continuum of care, not a replacement or alternative to short term in-patient psychiatric hospitals like Desert Vista or a long-term facility like Arizona State Hospital (ASH).
There already exist secured residential treatment settings in AZ, e.g.: for adolescents. This year’s legislation and subsequent new licensing will permit similar recovery-based treatment for adults that have been unsuccessful with the current behavioral health treatment offerings.
Who is the target population for secure treatment?
Characteristics of the target population for Secure Treatment Facility:
Have failed at treatment in unrestricted community living
All referrals should have serious mental illness too severe to live with family or friends.
Failed multiple attempts at living independently.
May have been unsuccessful at other programs and housing settings.
Have had many contacts with fire paramedics, police and the judicial system.
They also may suffer from addiction which often is grounds for eviction from other programs.
The target population may improve under supervised treatment, but often relapse when released too soon to have benefited from a long term supportive and therapeutic environment.
All persons considered for Secure Residential Treatment will have a court proceeding with counsel.
ACMI board members are committed to the recovery model and believe that all individuals that have been unsuccessful in the current offering deserve a chance for recovering in a safe setting.